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SciELO Brazil

Quality of life and challenges of family members of children with meningomyelocele

Objective: To identify the main challenges of the family of a child with meningomyelocele (MMC) and correlate the Zarit Burden Interview (ZBI) scale with the World Health Organization Quality of Life-BREF (WHOQOL - BREF). Methods: Questionnaires were sent through an online platform to groups of parents and caregivers of children with MMC. Four WHOQOL-BREF domains were evaluated: physical, psychological, social and environmental.

Thu, 01/19/2023 - 17:16

Social Networking Family of Caregivers during Hospitalization of Children

Objective: To identify and analyze the significant networks of family, social and hospital support described by the family caregivers of hospitalized children 5-12 years during the hospital stay.

Method: Descriptive study, exploratory and qualitative study conducted with 20 caregivers of children hospitalized in a hospital in a city in southern Brazil, through semi-structured interviews and significant social networks maps, tailored to the hospital setting.

Tue, 01/17/2023 - 10:02

Educational demands of family members of children with special health care needs in the transition from hospital to home

Objectives: to analyze the educational demands of family members of children with special health care needs in the transition from hospital to home Methods: qualitative research conducted between February and June 2018, using the handbook on creativity and sensitivity dynamics, from the sensitive creative method; the participants were nine family caregivers of children admitted to a public hospital in Rio de Janeiro; the data were subjected to French discourse analysis

Wed, 01/11/2023 - 12:51

Experiences of family members of children with cystic fibrosis under the light of Callista Roy

Objective: To know the experiences of family members of children with cystic fibrosis under the light of the theory of Callista Roy.

Method: Qualitative research that used the adaptation theoretical framework of Callista Roy for inductive content analysis. Fifteen family members, in a university hospital, between 23 and 63 years old, participated in the study, from September to October 2018.

Thu, 01/05/2023 - 15:01

Interaction between family and child/adolescent with hearing deficiency

Purpose: to know the family interaction with the hearing impaired child/adolescent.

Tue, 12/20/2022 - 16:37

Factor analysis of the Resilience Scale for Brazilian caregivers of people with Alzheimer's disease

Background: Resilience is a dynamic process that acts to modify the effects of an adverse life event. Objectives: In this study, we aimed to test the construct validity of the Resilience Scale by employing exploratory and confirmatory procedures, and to investigate the relationship between caregiver's resilience and clinical status of people with Alzheimer's disease. Methods: A sample of 143 dyads of people with Alzheimer's disease and their primary caregivers were included.

Thu, 09/01/2022 - 13:55

“We are humans after all”: Family caregivers’ experience of caring for dependent older adults in Brazil

Objective: This paper aims to understand the experiences of family caregivers with dependent older adults in Brazil and the consequences of caring for dependent older adults in the family caregiver’s life. Methods: This is a qualitative multicenter study employing dialectical hermeneutics as a theoretical framework. In-depth interviews were conducted with 84 family caregivers in Brasília, Rio de Janeiro, Belo Horizonte, Fortaleza, Teresina, Porto Alegre, and Araranguá, and Manaus.

Mon, 07/25/2022 - 13:51

Virtual support group for family caregivers of elderly people with dementia in the COVID- 19 scenery

Introduction: The physical, mental and social status of family caregivers and their care demands have been largely overlooked. This fact has been no different during the COVID-19 pandemic.

Mon, 07/25/2022 - 13:04

Use of psychotropic drugs and its association with overburden on family caregivers of psychosocial care center users

Objectives: The scope of this study was to investigate the prevalence of psychotropic drug use and its association with the overburden felt by family caregivers of Psychosocial Care Center users. This is a cross-sectional study performed with 537 family caregivers in the 21st Health Region of the State of Rio Grande do Sul. Background: The prevalence of psychotropic drug use was calculated with a 95% confidence interval (95%CI) and the heterogeneity tests were performed between the strata of each independent variable.

Fri, 07/22/2022 - 16:08

Subjective life experiences of family caregivers of dependent older adults

Objectives: This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. Methods: The hermeneutic-dialectic, theoretical, methodological framework was employed. Findings: The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2.

Tue, 06/28/2022 - 13:29

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