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Caregiving burden and depressive symptoms among ultra‐orthodox Jews: The moderating role of sense of community

Background: Individuals who care for aging parents or relatives often experience caregiving burden, which is associated with various negative psychological outcomes. During the current COVID‐19 pandemic, the conflict between caring for older relatives and taking the necessary personal precautions against infection may be exacerbated among individuals who belong to social groups, which perceive caring for others as an indispensable cultural construct.

Tue, 01/25/2022 - 14:32

Caregiver's difficulty paying child's healthcare bills and bullying victimization of adolescents with physical disabilities

Objective: Guided by the ecological systems perspective, the objective of the study was to examine whether caregivers' difficulty paying their child's health‐care bills is associated with bullying victimization directly and indirectly through the mediating mechanisms of caregivers' frustration, adolescents' internalizing problems, and social difficulty focusing on adolescents with physical disabilities.

Mon, 01/24/2022 - 20:38

Caregiver willingness to provide care in the ICU: A concept analysis

Aim: The purpose of this paper is to conceptually define "caregiver willingness" for application to a family member providing care to a critically ill loved one during an intensive care unit (ICU) hospitalization. Background: Delivering care to a family member may have psychological benefits for both the caregiver and the critically ill loved one; however, the willingness of family members to provide care is an elusive concept. Examination of the "caregiver willingness" concept will help to advance nursing science.

Mon, 01/24/2022 - 20:16

Caregiver distress and quality of life in primary caregivers of oncology patients in active treatment and follow‐up

Objective: As the number of informal caregivers and their caregiving responsibilities increase, this study aims at evaluating caregiver distress, quality of life (QoL) and their predictors in informal caregivers of cancer patients during active treatment and follow‐up. Methods: This cross‐sectional descriptive study targeted primary caregivers of patients with different cancer diagnoses. Caregiver‐reported outcomes were measured by the Caregiver Risk Screen (CRS), Distress Thermometer (DT) and Caregiver Quality of Life Index—Cancer (CQOLC).

Mon, 01/24/2022 - 12:46

Cancer patients' experiences of realization of relatives' participation in hospital care: a qualitative interview study

Background: Relatives' participation in the care of patients with cancer in hospital is essential to both patients and relatives. Although the meaning of relatives' participation has been recognized, knowledge about how patients experience this participation is rare. Aims: To describe the experiences of patients with cancer of the realization of relatives' participation in the hospital care. Materials & Methods: A qualitative study with semi‐structured interviews of patients with cancer (n=21) were conducted.

Mon, 01/17/2022 - 18:52

Bibliotherapy for improving caregiving appraisal of informal caregivers of people with dementia: A pilot randomized controlled trial

Background: Caregiving appraisal is a key driver to moderating caregiving outcomes. The caregiving appraisal of informal caregivers of people with dementia requires increased attention. This study aimed to explore the feasibility and acceptability of an evidence‐based bibliotherapy protocol, and test the efficacy on improving caregiving appraisal. Design: A two‐arm pilot randomized controlled trial was adopted.

Fri, 01/14/2022 - 17:35

Association between direct interpersonal involvement with a dying family member and discussions regarding advance care planning among Japanese older adults

Aim: There is growing recognition of the need to hold advance care planning discussions. Older adults who have direct interpersonal involvement with dying family members might begin to consider their own end‐of‐life care. This study examined the associations between experiences of being with a dying family member and advance care planning discussions among Japanese older adults. Methods: This study examined data from a previous self‐administered questionnaire survey carried out among outpatients aged ≥65 years.

Wed, 01/12/2022 - 16:00

Association between direct interpersonal involvement with a dying family member and discussions regarding advance care planning among Japanese older adults

Aim: There is growing recognition of the need to hold advance care planning discussions. Older adults who have direct interpersonal involvement with dying family members might begin to consider their own end‐of‐life care. This study examined the associations between experiences of being with a dying family member and advance care planning discussions among Japanese older adults. Methods: This study examined data from a previous self‐administered questionnaire survey carried out among outpatients aged ≥65 years.

Wed, 01/12/2022 - 16:00

Are the gender gaps in informal caregiving intensity and burden closing due to the COVID-19 pandemic? Evidence from the Netherlands

Background: This research note presents the findings of changes in the gender gap in informal care provision and caregiver burden during the Spring 2020 COVID-19 lockdown in the Netherlands. Government measures in response to the pandemic strongly restricted informal caregivers in providing help and care to persons with health-related needs. At the same time, formal care was scaled back and informal caregivers' urge to help their loved ones was likely higher than before the pandemic.

Tue, 01/11/2022 - 16:34

Application of the hospital‐family holistic care model in caregivers of patients with permanent enterostomy: A randomized controlled trial

Aims: To evaluate the effectiveness of the hospital‐family holistic care model based on the theory of 'Timing It Right' in caregivers of patients with permanent enterostomy. Design: A prospective randomized controlled trial. Methods: One hundred and twenty‐five caregivers of patients with permanent enterostomy were recruited from 1 May 2017–31 August 2019. They were randomized into either intervention group (N = 62) or control group (N = 63).

Thu, 12/16/2021 - 18:22