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Qualitative study

Challenges to Family Caregivers in Caring for Gastric Cancer Patients from Perspectives of Family Caregivers, Patients, and Healthcare Providers: A Qualitative Study

Objectives: Cancer affects both patients and their families. Sometimes, the effects of cancer on families are greater than its effects on patients. Family caregivers play significant roles in care for patients with cancer. Nonetheless, the data on the challenges they face in caregiving are limited. The present study explored the perspectives of patients with gastric cancer (GC), their family caregivers, and healthcare providers regarding family caregivers' challenges in caregiving to patients with GC.

Tue, 08/23/2022 - 21:22

Co‐production in coping with care dependency in Germany: How can integrated local care centres contribute?

Background: In Germany, most care dependent people are looked after by family members at home. Professional support can help ease the burden of caring relatives and stabilise home care. Ideally, care then is provided through the co‐production of formal and informal caregivers. Objective: This article analyses how care dependent people and their family caregivers integrate professional support into their care arrangements.

Fri, 08/05/2022 - 21:43

“What do we fear the most?”: Exploring fears and concerns of patients, family members and dyads in end‐stage renal disease

Background: End‐stage renal disease (ESRD) and the need for haemodialysis (HD) treatment are increasing. The course of the disease and all the life readjustments needed may generate a multitude of fears in patients and families.AimThis study aimed to explore the main fears and concerns of patients with ESRD undergoing HD and their family members. Methods: A qualitative study was performed.MethodsIndividual semi‐structured interviews were conducted with three groups: 20 patients, 14 family caregivers and 15 patient–family dyads.

Fri, 07/29/2022 - 20:38

Care without sufficient knowledge of people with home enteral tube feeding: A qualitative study

Objectives: This study aimed to explore family caregivers experiences with tube feeding at home in Iran. Methods: This qualitative study was conducted with purposefully selected family caregivers who participated in an in-depth, semi-structured, face-To-face interview. Data analysis was performed through content analysis and rigor was investigated. Results: In total, 20 caregivers were interviewed. Two main categories were found in the interview data: abandoned training and lack of knowledge of nutrition .

Fri, 07/29/2022 - 19:40

“What do we fear the most?”: Exploring fears and concerns of patients, family members and dyads in end‐stage renal disease

Introduction: End‐stage renal disease (ESRD) and the need for haemodialysis (HD) treatment are increasing. The course of the disease and all the life readjustments needed may generate a multitude of fears in patients and families. Objectives: This study aimed to explore the main fears and concerns of patients with ESRD undergoing HD and their family members. Methods: A qualitative study was performed.MethodsIndividual semi‐structured interviews were conducted with three groups: 20 patients, 14 family caregivers and 15 patient–family dyads.

Fri, 07/29/2022 - 19:25

Young adults suffering from mental illness: Evaluation of the family‐centred support conversation intervention from the perspective of mental healthcare professionals

Aims and objectives: To explore how mental healthcare professionals' experience and evaluate the use of Family‐Centred Support Conversation Intervention. Background: Mental health professionals working in the community mental health service provide treatment, care and support to young adults suffering from mental illness. Young adults suffering from mental illness are dependent on other family members and live close to the family. The Family‐Centred Support Conversation promotes healing and alleviates the suffering of the family.

Mon, 07/18/2022 - 21:08

Preparedness for the death of an elderly family member: A possible protective factor for pre-loss grief in informal caregivers

Background: Pre-loss grief (PLG) has been identified as a robust risk factor for Prolonged Grief Disorder, which will be added to the DSM 5-TR. Therefore, identifying treatment targets to reduce PLG is warranted. "Preparedness" has been found to strongly predict PLG. The work is nascent and a consensus has not been reached about how best to assess for preparedness, and no reliable measure of this construct exists. Before examining the relationship between preparedness and PLG, an in depth understanding of how family members define preparedness is warranted.

Sun, 06/12/2022 - 17:48

Informal care in the context of long-term health care for the elderly in Slovenia: A qualitative study

Background: Slovenia is an aging society. Social security expenditures for the elderly are rising steadily, and the majority of Slovenians are firmly convinced that the state must provide elder care. This situation means that informal caregivers face many challenges and problems in their altruistic mission. Objectives: To explore the experiences and feelings of informal caregivers and to provide an understanding of how informal caregivers support the elderly and what challenges and difficulties they face in Slovenian society.

Mon, 06/06/2022 - 11:27

Exploring the meaning of dignity at end of life for Chinese Canadians caregivers: A qualitative cross-cultural study

Background: Preserving patient dignity is a fundamental value in palliative care and is associated with an increased sense of meaning at end of life. The empiric Dignity Model, developed by Chochinov et al. (2002), identifies physical and psychosocial issues impacting dignity and provides guidance for dignity conserving care. Aim: This study's objectives are to explore the generalizability of the empiric Dignity Model to Chinese Canadians an immigrant population influenced by both Western and Asian values.

Tue, 03/01/2022 - 09:25

Exploring the barriers to pulmonary rehabilitation for patients with chronic obstructive pulmonary disease: a qualitative study

Background: The complexity of chronic obstructive pulmonary disease (COPD) and its different physical, mental, familial, occupational, and social complications highlight the necessity of pulmonary rehabilitation (PR) for afflicted patients. However, PR for patients with COPD usually faces some barriers. The aim of this study was to explore the barriers to PR for patients with COPD. Methods: This qualitative descriptive study was conducted in January 2019 to October 2020.

Tue, 03/01/2022 - 08:58

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