Confidentiality

Objective: This study evaluates and characterizes the use of a confidential clinic note type as part of the implementation of open notes at a free-standing children's hospital. We describe how this electronic health record feature which disables patient and family access to selected notes in the patient portal is used across our institution, which clinicians are using this feature, and the type of data our clinicians consider confidential.

This paper reports on some of the findings from a collaborative study funded by the Big Lottery and led by Crossroads Caring for Carers about carers for people with mental health problems. The protection and use of information in mental health are firmly rooted in ethics and professional codes, law and policy, as well as values and professional practice. While government initiatives have attempted to augment the role and rights of carers, policy guidance involving information sharing between professionals and carers has failed to deal with the practical dilemmas of patient confidentiality.

Supervised community treatment, to be introduced under the new Mental Health Act 2007, is intended to help revolving door patients stay out of hospital by requiring them to accept treatment in the community. This article highlights fears that this may increase the burden on carers.  Carers will not be involved in the decision behind giving a treatment order and may not understand what support is available to them.

Relatives or carers of people with mental health problems have criticised professionals for their failures to share information with them. This article reports on a multiple method study comprising a policy search, a survey of service users, carers and professionals, and stakeholder interviews and group events. The study found new policies that addressed the principles underpinning information sharing with carers. However, examples of good practice in professional involvement of carers that took account of carer rights and responsibilities emerged from the research.

Objectives: This paper looks to examine the emerging role of carers as essential components in the management of individuals affected by severe mental illness in the context of modern legal and health policy environments. Conclusions: Cultural and legal concepts of confidentiality within the doctor–patient relationship are complex.

‘This leaflet is about confidentiality issues which arise between mental health professionals and carers of adults with mental health problems, in particular those who provide on-going help and support, without payment, to a relative, partner or friend.

The issues of confidentiality and information-sharing between mental health professionals and carers are difficult and complex to resolve. Some of these problems are described, together with examples of good practice which may help address them.’