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Chronic and terminal illness: new perspectives on caring and carers

Most chronically and terminally ill patients are cared for in their own homes by family and friends, rather than in hospitals or hospices. These carers are an invaluable free resource and there is an increasing amount of research into their role and the experiences of caring for the terminally ill, patients with cancer, and patients with other chronic diseases. This book provides a critique of the theoretical concept of caring, carers, and caregivers. The material is based on empirical evidence from recent studies of adults with acquired chronic illnesses, including terminal illness.

Thu, 07/20/2017 - 15:18

Young carers in their own words

An estimated 50,000 children in Britain today regularly take on the hard work and responsibility of caring for a relative who is ill or disabled. These ‘young carers’ were, until recently, a hidden and neglected group in society, unacknowledged and unsupported. There are now over 100 young carers projects throughout Britain, and the Government’s National Carers Strategy document outlines a series of commitments designed to improve young carers’ lives.

Thu, 07/20/2017 - 15:17

Proposed Carers Strategies (Wales) Measure (as introduced): January 2010

A measure which outlines the ability of the National Assembly for Wales to leglislate to introduce a new requirement on the NHS and local authorities in Wales to prepare, publish and implement a strategy to provided information and advice for carers.

Thu, 07/20/2017 - 15:17

Assistance and support

The CRPD sees support and assistance not as ends in themselves but as means to preserving dignity and enabling individual autonomy and social inclusion. Equal rights and participation are thus to be achieved, in part, through the provision of support services for people with disabilities and their families. Article 12 restores the capacity of decision-making to people with disabilities. Respecting individual wishes and preferences – whether through supported decision-making or otherwise—is a legal imperative (see Box 5.1).

Thu, 07/20/2017 - 15:16

In their own right : the Carers Act and carers of people with learning disabilities

This book reports on the first research study to reflect the experiences of carers of people with learning disabilities following the implementation of the 1995 Carers Act.

Thu, 07/20/2017 - 15:11

"But I don't want eldercare!" Helping your parents stay as strong as they can as long as they can

Written from an American perspective, this book tackles head on the powerful myths and discriminatory attitudes that underlie one of the unspoken moral disasters of contemporary life: that so many older people die, before their time, cut off from their family and their homes, unhappy and alone.

Thu, 07/20/2017 - 15:11

Service user and carer involvement: beyond good intentions

The increasing focus on the involvement of people who use health and social care services and their carers in developing services and in social work education has the potential to bring significant change. This book examines the challenges in enabling people who are `experts by experience' to participate in an agenda which is largely dominated by 'top-down' managerial practices. Several themes run through the book.

Thu, 07/20/2017 - 15:10

Riding the diabetes rollercoaster: A new approach for health professionals, patients and carers

This work includes foreword by Ian Botham, OBE, former England Cricket Captain and father of a daughter with Type 1 Diabetes. This groundbreaking book reveals how science and medicine have traditionally tried to make diabetes simple and orderly, despite its obvious messiness and complexity. The result has left patients, carers and health professionals confused and frustrated. Using complexity science, "Riding the Diabetes Rollercoaster" provides a radical new approach to understanding and managing diabetes that embraces its uncertainties and challenges.

Thu, 07/20/2017 - 15:10

Hidden carers

Informal carers provide the majority of care for older people living in the community. The provision of care can be very stressful and is said to have an adverse effect on caregivers health. policy has recognised the need to support carers and a key objective has been to improve service provision for them. research has shown that service intervention can prevent the breakdown of care and admission to long term care. However, relatively few carers and older people use formal services. While the low uptake of services is documented it is not fully understood.

Thu, 07/20/2017 - 15:09