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APPEAL‐1: A pan‐European survey of patient/caregiver perceptions of peanut allergy management

Background: Peanut allergy (PA) is associated with marked quality‐of‐life (QoL) impairment. However, data are lacking on the experience and impact of living with PA from the perspectives of persons with PA (PwPA) and their caregivers. Allergy to Peanuts imPacting Emotions And Life study 1 (APPEAL‐1) was a pan‐European survey investigating these perspectives. This first of two articles reports clinical characteristics of PwPA and PA management practices.

Thu, 01/12/2023 - 08:32

Improving mental health in families with autistic children: benefits of using video feedback in parent counselling sessions offered alongside music therapy

BACKGROUND: This paper explores benefits of parent counselling offered alongside music therapy with children with autism spectrum disorders (ASD). Research studies have shown that the stress levels of primary caregivers of children with ASD are not only higher than in the general population but also higher than in parents of children with other developmental disabilities. It is therefore recommended that music therapists working with children with ASD also engage and support their parents.

Thu, 01/12/2023 - 08:26

New Approach to Pediatric Treatment Planning to Support Caregivers Living with Adversities

Pediatric practitioners are called upon to identify adverse childhood experiences and social determinants of health, given the growing evidence of the prevalence, lifelong risk, and potentially preventable impact of adversities. Caregivers serve as a strong mediator of how adversities affect children, with toxic stress resulting from the lack of a buffering caregiver in the context of prolonged stress activation.

Wed, 01/11/2023 - 17:02

Facilitators and Barriers of Advance Care Planning Discussions with Adolescents, Young Adults, and Parents of Children with Serious Illness (RP403)

Objectives: Describe the advance care planning communication preferences of children and adolescents and young adults (AYAs) with serious illness and their families. Describe multidisciplinary clinicians' current approach to advance care planning communication as well as perceived facilitators and barriers to initiating advance care planning discussions with AYAs and parents of children with serious illness. Discuss opportunities for further research to improve advance care planning communication for children and AYAs with serious illness and their families.

Wed, 01/11/2023 - 17:00

Supporting ill children to be cared for at home

In 2006, WellChild instigated its WellChild Children's Nurse programme, which provides practical and emotional support to children with exceptional health needs and their families, enabling children to leave hospital and be cared for at home wherever possible. Some sit within community children's nursing teams, but all liaise with hospital and community colleagues, often spanning several teams within a region as well as other specialist nurses, such as palliative and learning disability nurses.

Wed, 01/11/2023 - 16:57

Youth Transition Home from Residential Mental Health Treatment: Caregivers' Perspective

Residential treatment (RT) provides a secure setting where youth with moderate to severe emotional and behavioral disorders reside long-term to receive treatment and care. The purpose of this study was to explore caregivers' perceptions of their child's immediate transition home following residential treatment. Ten mothers of youth discharged from RT participated in a semi-structured interview approximately 4 weeks after discharge from RT in Ontario, Canada.

Wed, 01/11/2023 - 16:53

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