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The end of life: informal care for dying older people and its relationship to place of death

Objective: This study examined the features of informal end-of-life care of older people living in the community and the association between informal care characteristics and dying at home. Methods: Retrospective data were obtained from interviews and self-administered questionnaires of 56 persons who had been primary caregivers of older relatives in the last three months of their lives. Results: Results showed that informal caregivers of terminally ill older people living in the community provided a considerable amount of personal, household, and management care.

Thu, 07/20/2017 - 15:21

The ethical evaluation of assistive technology for practitioners: a checklist arising from a participatory study with people with dementia, family and professionals

Purpose – Uncertainty over ethical impact may hinder uptake of assistive technology (AT) in dementia. This study aims to examine whether AT contributes to person‐centred care, whether users can participate in research and to explore ethical dilemmas with users, family and professional carers.

Thu, 07/20/2017 - 15:21

A cost evaluation of multiple sclerosis

As a chronic and disabling disease, multiple sclerosis (MS) is extremely costly, both for the individual and the family, as well as far the society. Early onset, long duration and effects on employment contribute to the extensive costs related to the illness.

Thu, 07/20/2017 - 15:21

Providing information for family carers of hospital patients experiencing dementia

Family carers of people with dementia may take on this role without understanding how it will evolve or how to obtain support. Hospitalisation of the person with dementia can not only compound carers’ concerns, but also provides an opportunity for their needs to be addressed.

Thu, 07/20/2017 - 15:21

Evaluation of effectiveness and satisfaction outcomes of a mental health screening and referral clinical pathway for community nursing care

The study aimed to explore the effectiveness of a mental health screening and referral clinical pathway for generalist community nursing care of war veterans and war widow(er)s in Australia on outcomes of client self-reported mental health, quality of life, and client and carer satisfaction. The pathway was developed by literature review and consultation, then trialled and evaluated. Validated screening tools were embedded within the pathway to support generalist nurses' mental health decision making. Pre- and post-measures were applied.

Thu, 07/20/2017 - 15:21

Unmet needs in formal care: kindling the spark for caregiving behavior

This paper studies if a situation of formal care unmet needs is a strong motivation for the onset of caregiving behavior, and if becoming caregiving is a compelling argument for leaving current job (in the presence/absence of formal care unmet needs). We use data from the Eurobarometer 67.3 for 18 European countries and estimate a three simultaneous equations model taking into account the potential endogeneity of labor participation and formal care unmet needs and assuming non-zero correlation among the error terms of the three equations.

Thu, 07/20/2017 - 15:21

Carers

A new initiative to support carers in the United States mirrors the national carers strategy in the UK. But there are important differences, such as the role of insurance in the provision of long term care. Looks at some recent research studies, in particular a study to understand how long-term care insurance for disabled older people can affect the lives of their working care givers.

Thu, 07/20/2017 - 15:21

Caring for people with eating disorders: factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders

OBJECTIVES: Carers of people with eating disorders (ED) have high levels of distress, but little is known about the contributing factors. The aim of this study was to examine predictors of carers' distress and caregiving appraisals using a model of caregiving adapted from the previous literature.

DESIGN: A cross-sectional design was used.

Thu, 07/20/2017 - 15:21

Impact of Providing Care on the Risk of Leaving Employment in Canada

Population aging is likely to lead to an increase in the number of people in need of assistance. It is well known that a large part of this assistance originates, and will continue to originate, from the network of relatives and friends. However, the effects of the provision of care on individuals' employment trajectories when this care is combined with employment of varying intensity or with childcare responsibilities have rarely been examined.

Thu, 07/20/2017 - 15:21

'After the stroke': patients' and carers' experiences of healthcare after stroke in Scotland

We report findings on patients with stroke and carers experiences of the healthcare system in Scotland after stroke. These findings emerged from data collected in a primary qualitative study exploring patients with stroke and carers perception of a Functional Electrical Stimulation (FES) Clinic. Rich data emerged in relation to healthcare after stroke as experienced by both patients and carers, highlighting important clinically relevant messages and constituting an important area for dissemination. Thirteen patients with stroke and nine carers consented to participate.

Thu, 07/20/2017 - 15:21