You are here

  1. Home
  2. Jour

Jour

Measurement of informal care: an empirical study into the valid measurement of time spent on informal caregiving

The incorporation of informal care into economic evaluations of health care is troublesome. The debate focuses on the valuation of time spent on informal caregiving, while time measurement, a related and may be even a more important issue, tends to be neglected. Valid time measurement is a necessary condition for the valuation of informal care. In this paper, two methods of time measurement are compared and evaluated: the diary, which is considered the gold standard, and the recall method, which is applied more often.

Thu, 07/20/2017 - 15:13

Is There a Trade-Off Between Caring for Children and Caring for Parents?

Adult's decision to care for aging family members has an aggregate effect on public income support programs as well on as health care services and costs. Families have continuously been the primary source of support and care of elderly members. It is estimated that adult children constitute 41.3% of all informal caregivers (Wolff & Kasper, 2006). However, recent demographic trends have changed the landscape of parental caregiving by placing unprecedented levels of competing demands for care, potentially limiting the availability of adult children to provide parental care.

Thu, 07/20/2017 - 15:13

Working with carers in the next decade: the challenge

This paper outlines two challenges to community nurses as they work with unpaid carers. These reflect a changing culture in the way that healthcare will be delivered in the coming decade. The first of these challenges is a shift towards focusing on outcomes for both service users and adult carers. Outcomes evidence the impact a service has on a person's life. The second is the increasing focus on the concept of carers as partners in care. 

Thu, 07/20/2017 - 15:13

Training informal carers of stroke patients reduces health and social care costs in the year following a stroke

Question: Is training informal carers of people who have had a stroke cost-effective?

Study design: Single blind randomised controlled trial.

Thu, 07/20/2017 - 15:13

Managing uncertainty in life after stroke: a qualitative study of the experiences of established and new informal carers in the first 3 months after discharge

Background: Caring for stroke survivors at home can have an enormous impact on informal carers and past research has tended to focus on the negative emotional consequences of caring, with few identifying any positive outcomes. Despite an awareness that the experiences of these carers change over time, there is a dearth of qualitative studies investigating carers’ experiences over time.

Objectives: To investigate the experiences of informal carers of stroke survivors over time.

Design: Qualitative study.

Thu, 07/20/2017 - 15:13

Older people's views about home as a place of care at the end of life

Objectives: To explore the attitudes of older people towards home as a place of care when dying. Design: A two-phase qualitative study using focus groups and semi-structured interviews. Participants: Eight focus group discussions were held with 32 participants recruited from six purposively selected community groups representing older people in Sheffield, UK. A further 16 men and 29 women participated in semi-structured interviews. Results: Participants identified that home was more than a physical location, representing familiarity, comfort and the presence of loved ones.

Thu, 07/20/2017 - 15:13

The search for meaning in HIV and AIDS: the carers' experience

This article explores informal carers' experiences in caregiving for people living with HIV and AIDS. The search for meaning encompasses the ways in which carers find meaning in caregiving. A grounded theory approach was taken. Data were collected by means of 43 in-depth interviews and participant observation. Caregivers felt that it was important to have control over the emphasis that HIV had within their lives and developed an attitude that put the virus in perspective. Getting involved in HIV and AIDS work outside of the immediate caregiving relationship was evident.

Thu, 07/20/2017 - 15:13

Family carers' experience of the need for admission of their relative with an intellectual disability to an Assessment and Treatment Unit

Background: There is limited research that explores the experiences of family carers of individuals with an intellectual disability requiring admission to a specialist National Health Service Assessment and Treatment Unit. Accordingly, this study aimed to explore family carers’ experience in respect of this phenomenon and their relationships with professionals at this time.

Thu, 07/20/2017 - 15:13

Plan with care

Research has been undertaken to look at how well social care and health organisations involve adult carers in service planning and delivery. This article concludes that while some carers are involved at a strategic level, carers are most dissatisfied about their involvement in individual assessment processes and outcomes. [Abstract]

Thu, 07/20/2017 - 15:13

‘You have to be mindful of whose story it is’: the challenges of undertaking life story work with people with dementia and their family carers

Introduction: Life story work is increasingly being used with people with dementia; this work offers a critical appraisal of some challenges that may be faced in practice.

Design and methods: An in-depth case study analysis was undertaken to understand the experiences of people with dementia, family carers and care staff in using life story work in an NHS Mental Health and Social Care Trust. Data collection included semi-structured interviews, observation, conversations and field notes.

Thu, 07/20/2017 - 15:13