You are here

  1. Home
  2. Jour

Jour

Shifting the balance of power? Short breaks for carers in Wolverhampton

Reports on a project in Wolverhampton which reviewed short break (respite care) services for carers and the projects progress so far. The project focused on carers of people in the age range of 18-65, where provision of short breaks was seen to be most in need of development. The project used action research methods and included involvement of a number of carer support groups. Accounts from 50 carers on their short break experiences and aspirations were also collected.

Thu, 07/20/2017 - 15:12

Next-of-kin caregivers in palliative home care - from control to loss of control

Aim.  This paper is a report of a study to describe situations influencing next-of-kin caregivers’ ability to manage palliative care in the home.

Background.  Palliative home care often involves major resources from next-of-kin, municipal and county personnel. Next-of-kin caregivers’ situation is depicted as so demanding and exhausting that it can affect their mental health and limit their ability to continue as a caregiver.

Thu, 07/20/2017 - 15:12

Trajectories of quality of life in early-stage dementia: individual variations and predictors of change

Background: Little evidence is available about how quality of life (QoL) changes as dementia progresses.

Objectives: We explored QoL trajectories over a 20-month period and examined what predicted change in QoL.

Thu, 07/20/2017 - 15:12

Development of a conceptual framework of positive aspects of caregiving in dementia

Research on family caregivers usually focuses more on stress and burden, especially in the context of looking after a person with dementia. This leads to fewer considerations of positive aspects of care giving. Thus enhancing these positive aspects represents an innovative approach to caregivers' support. Furthermore, these aspects need more conceptualisation to underpin the development of such an approach. This article proposes a conceptual framework of the positive aspects of care giving based on an integrative literature review.

Thu, 07/20/2017 - 15:12

A review and commentary of the social factors which influence stroke care: issues of inequality in qualitative literature

Stroke is the third most common cause of death in the UK and a major cause of adult disability. Stroke services have long been criticised for being deficient and there is evidence that some aspects of care provision vary across different population groups. While there is information about the patterns of service provision, questions remain about processes which might underlie these variations.

Thu, 07/20/2017 - 15:12

Caring for a relative with dementia: family caregiver burden

This paper is a report of part of a study to investigate the burden experienced by families giving care to a relative with dementia, the consequences of care for the mental health of the primary caregiver and the strategies families use to cope with the care giving stressors. The cost of caring for people with dementia is enormous, both monetary and psychological. Partners, relatives and friends who take care of patients experience emotional, physical and financial stress, and care giving demands are central to decisions on patient institutionalisation.

Thu, 07/20/2017 - 15:12

Citizenship, migration and the value of care in the European Union

This paper examines the relationship between care and mobility. It does so within the specific context of intra‐EU migration and the development of European citizenship. Citizenship of the Union bestows valuable social rights on mobile community nationals. Entitlement under the provisions is not, however, universal but conditional and privileges those in paid work.

Thu, 07/20/2017 - 15:12

Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta- analysis

In the present meta-analysis, we integrated findings from 228 studies on the association of six caregiving-related stressors and caregiving uplifts with burden and depressed mood. Care recipients' behavior problems showed stronger associations with caregiver outcomes than other stressors did. The size of the relationships varied by sample characteristics: Amount of care provided and care receivers' physical impairments were less strongly related to burden and depression for dementia caregivers than for caregivers of nondemented older adults.

Thu, 07/20/2017 - 15:12

Similar and yet so different: Cash for Care in six European countries' long-term care policies

Context: In response to increasing care needs, the reform or development of long-term care (LTC) systems has become a prominent policy issue in all European countries. Cash-for-care schemes—allowances instead of services provided to dependents—represent a key policy aimed at ensuring choice, fostering family care, developing care markets, and containing costs.

Thu, 07/20/2017 - 15:12

Introduction of a new NHS electric-powered indoor/outdoor chair (EPIOC) service: benefits, risks and implications for prescribers

Objective: To determine problems associated with electric-powered indoor/outdoor wheelchairs (EPIOCs) and the benefits perceived by their users.

Design: Hospital-based cohort study of all patients referred over a 19-month period.

Setting: Regional Wheelchair Service for North West London serving nine district wheelchair services.

Thu, 07/20/2017 - 15:12