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Abstract

Provider Views on Integrating Family Caregivers in Clinical Encounters (RP413)

Objectives: • Critique, from the view of providers, the potential benefits and drawbacks of integrating family caregivers into clinical encounters. • Describe provider attitudes, beliefs and ethical and clinical considerations that may affect the integration of family caregivers into clinical encounters.  Importance: Family caregivers frequently accompany patients to clinical encounters, particularly when dealing with serious illnesses. Family caregivers, however, are not often invited to be active participants in clinical encounters.

Sun, 12/13/2020 - 17:09

266User-Centered Design of a Mindfulness Application to Support Older Informal Carers

Background: Mindfulness-based interventions (MBIs) have grown in popularity in recent years and have been shown to reduce stress and increase quality of life among older informal carers. A digital application delivering MBIs has been iteratively designed based on user-centered designed principles and aims to support older informal carers to manage stress and sleep. We describe a qualitative study with older informal carers and the resulting digital application. Methods: A qualitative study with 20 older adults took place over a 2-year period.

Wed, 06/05/2019 - 15:39

146Feasibility of a Resilience-Enhancing Resource for Family Carers of People with Dementia

Background: The WHO recommends involving carers in designing support programmes for people with dementia and their family carers. Moreover, researchers need to develop empowering and inclusive models of research in dementia care. Working with a network of current and former family carers of people with dementia, we co-designed an information and support resource to enhance the resilience of family carers of people with dementia.

Mon, 06/03/2019 - 14:16

Investigation into the needs of informal caregivers of stroke survivors in Antananarivo, Madagascar

Background: Stroke is the second leading cause of disability in Madagascar, half of those affected are <50. All treatment must be paid for; however, 92% live on <2€/day, so informal caregivers are very important. Method: In 2017, 15 caregivers of stroke survivors were interviewed by a medical student, in the rehabilitation department of the university hospital in Antananarivo, Madagascar.

Sun, 06/02/2019 - 17:34

296Exploring Personhood in Formal Care Provision in Ireland: Perspectives from Family Carers of People with Dementia

Background: Personhood in dementia is about treating people with dementia with dignity and respect and in a manner that supports their sense of self. It is a key element of person-centered care and a guiding principle in dementia care policy in Ireland. However, there is uncertainty around the concept of personhood and in particular how it is operationalised within formal care provision. This research examines the experiences and perceptions of family carers of people with dementia in relation to personhood and formal care provision.

Wed, 05/29/2019 - 11:02

Impact of a Tailored Multicomponent Interdisciplinary Intervention on Family Caregiver Preparedness

In 2013, nearly 43.5 million Americans provided 37 billion hours of uncompensated care to their loved ones. Despite their significant contributions, family caregivers often feel inadequately prepared for their caregiving roles resulting in increased caregiver burden, which impacts their health and well-being. To enhance family caregivers’ sense of preparedness, a tailored multicomponent interdisciplinary caregiver intervention was implemented in an inpatient rehabilitation unit of an urban community hospital in the Midwest.

Wed, 04/03/2019 - 12:29

Measuring What Matters for Families and Caregivers: But How? (SA505)

An abstract of a study by Tucker et al defining the barriers and opportunities associated with measuring family and caregiver satisfaction with palliative care services in inpatient and ambulatory settings is presented. Hospital Consumer Assessment of Healthcare Providers and Systems surveys which are mandated by CMS and the subsequent Value Based Purchasing payment system has brought increased attention to the potential effects of quality PC services through an emphasis on communication skills, coordination of care, pain management and goals of care discussions.

Objectives

Thu, 03/28/2019 - 18:36

The Unmet Needs of Patients and Carers within Community Based Primary Health Care

Introduction: Community Based Primary Health Care (CBPHC) is positioned as the foundation of integrated health systems, intended to support broader goals of population health and health system sustainability. CBPHC moves beyond traditional primary care (a physician visit) to team based care that spans organizational boundaries (such as primary care clinics + community care services).

Wed, 06/06/2018 - 14:31

Research abstracts

Presents various abstracts concerning palliative care. Views of terminally ill patients on the needs of their informal carers; Case series on peritoneal mesothelioma; Clonazepam for pain management in advance cancer; Symptoms of chronic heart failure.

Thu, 07/20/2017 - 15:23

Social inclusion for the mental health of informal caregivers of Alzheimer disease's patients: The role of reemployment strategies of socially excluded

Alzheimer's disease (AD) is a one of the leading cause of dependency among older adults and of institutionalization in Europe. The number of people with AD is estimated in 10 million people and the cost of the disease has been recently estimated in 100.000 million of euros per year in the European Union (European Brain Council, 2011). There is nowadays no effective treatment of the disease.

Thu, 07/20/2017 - 15:19

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