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The role of telemonitoring in caring for older people with long-term conditions

Long-term conditions have a negative effect on the lives of older people and those who care for them. As the population ages, so the prevalence of long-term conditions increases, which presents substantial challenges to providers of health and social care. This article examines how telemonitoring could help to meet some of these challenges. Telemonitoring involves patients at home recording vital signs, for example, blood pressure and pulse, and transmitting this information electronically to nurses based elsewhere.

Thu, 07/20/2017 - 15:10

Predictors of Societal Costs in Dementia Patients and Their Informal Caregivers: A Two-Year Prospective Cohort Study

Objectives: Dementia poses a substantial economic burden on society. Knowing which factors predict high costs in dementia may help to better target interventions and optimize resource allocation. This study aimed to identify predictors of the total societal costs in dementia patients and their informal caregivers.

Design: Prospective cohort study with 2-year follow up.

Setting and Participants: 192 community-dwelling patients with dementia and their primary informal caregivers in the Netherlands.

Thu, 07/20/2017 - 15:10

'They just don't get it.'

Young adult carers experience significant disadvantage as a result of their caring responsibilities--not least in education. While there is some creative and flexible provision out there, the author stresses that too often providers fail to take account of the specific needs and responsibilities of young carers. The author presents the comments made by young adult carers who participated in focus groups and interviews as part of recent NIACE research, "Access to Education and Training for Young Adult Carers," funded by the Nuffield Foundation.

Thu, 07/20/2017 - 15:10

What do informal carers need from district nursing services? (Cover story)

More than 5 million informal carers provide support to individuals who wish to remain within their own homes. The role of informal carers in maintaining people within their own homes has been identified as crucial. This article considers the assessment of need of informal carers in the primary care setting, placing particular emphasis on the role of the district nurse as an advocate for informal carers when working with other health and social care service providers.

Thu, 07/20/2017 - 15:10

ISISEMD: Intelligent system for independent living and self-care of seniors with mild cognitive impairment or mild dementia

According to the 2009 World Alzheimer Report, the number of people living with Alzheimer's and dementia is predicted to double almost every 20 years, and people will experience their first symptoms of dementia at an earlier age. In Europe the number of people with dementia is conservatively anticipated to increase by 40% over the next 20 years mainly due to the increase in the ageing population. As a consequence, social care providers in Europe will face major challenges over the next couple of decades due to the increased care demand for people suffering from dementia.

Thu, 07/20/2017 - 15:10

“I Can’t Go to School and Leave Her in So Much Pain”: Educational Shortfalls Among Adolescent ‘Young Carers’ in the South African AIDS Epidemic

“I go to the hospital with my mother when she is sick. I can’t go to school and leave her in so much pain. I won’t concentrate.” Millions of adolescents live with AIDS-affected parents or primary caregivers. Little is known about educational impacts of living in an AIDS-affected home, or of acting as a “young carer” in the context of AIDS. This study combined qualitative and quantitative methods to determine educational impacts of household AIDS-sickness and other-sickness.

Thu, 07/20/2017 - 15:10

Improving nutrition and care for people with dementia

As the number of people diagnosed with dementia rises, care services are facing a significant increase in people accessing services, be it community, hospital or long-term residential care. Maintaining wellbeing is an essential aspect of quality of life, and appropriate nutrition and hydration are essential to wellbeing. Care staff require knowledge and understanding of dementia, the impact dementia has on the individual and the challenges and issues it presents for formal and informal carers. The National Dementia Strategy and the Prime Minister's Challenge have placed emphasis on improved

Thu, 07/20/2017 - 15:10

Editorial

The article presents a letter from the editor of the journal discussing the articles presented within, which are centered on the subject of the lived experience of intellectual disabilities. The author summarizes the articles individually, which include research on the interactions of mothers with a learning disability with professionals, and the views of informal carers on a variety of topics.

Thu, 07/20/2017 - 15:10

Development of an integrated external and internal location system with activity monitoring

Although the potential of using location information to support people with dementia has been recognised, the uptake of location technology in this area has been limited compared with the uptake of standard Telecare techniques. The paper examines the reasons for this and describes a project, EASE (Extended Active Support Environment) which was commissioned by NHS South as part of their SBRI for Dementia programme, to develop a system which would address these issues and make location technologies a practical tool to support people with more advanced dementia. 

Thu, 07/20/2017 - 15:10

End-of-Life Care in Italian Hospitals: Quality of and Satisfaction With Care From the Caregivers' Point of View—Results from the Italian Survey of the Dying of Cancer

Context: A number of studies have highlighted the poor quality of end-of-life (EOL) care provided in hospital settings, leading to a reduction in the quality of EOL care and increase in patient and caregiver dissatisfaction levels.

Objectives: The aims of this study were the evaluation of the prevalence of major symptoms, treatment, outcomes, information, and care provided to dying cancer patients in Italian hospitals; and an analysis of clinical and socio-demographic factors associated with caregiver satisfaction with the health care provided.

Thu, 07/20/2017 - 15:10

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