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Conference paper

Critical Design Factors for Information Technology Supporting Type 1 Diabetes Management

Background: During childhood, patients with Type 1 diabetes (T1D) are reliant on an informal caregiver (parent or guardian) for day-to-day disease management. Upon entering adolescence, patients are expected to adopt a greater role in self-management. However, adolescents often have difficulty adhering to management regimens, which can lead to poor health outcomes.

Sun, 01/01/2023 - 15:19

A study of health seeking behavior in families of children with Type 1 diabetes

Objectives: Importance of HSB is increasing being recognized in understanding patient compliance, adequacy of followup, and seeking of alternative therapies (AT), which impact glycemic control. We looked at HSB of T1D caregivers.

Methods: 56 families: Child's T1D duration >1 y, were interviewed: 49 coming to a private clinic, 7 in government hospitals. SES was low in 20, upper/middle ("non-poor") in 36.

Wed, 12/21/2022 - 11:06

The lived experience of parents whose children are deafblind: an occupational perspective...College of Occupational Therapists Conference, June 28-30, 2016

This study explores the lived experience of parents whose children are deafblind and examines whether it can be considered a meaningful occupation. The number of people who are deafblind is growing (Robertson and Emerson 2010), as are the number of parent-carers, yet deafblind research traditionally follows a medical model, focusing on older people (Brennan et al. 2005).

Wed, 12/21/2022 - 10:32

Nursing’s role in successful stroke care transitions across the continuum: From acute care into the community

Background: Facilitating successful care transitions across settings is a key nursing competency. Although we have achieved improvements in acute stroke care, similar advances in stroke care transitions in the postacute and return to community phases have lagged far behind. In the current delivery system, care transitions are often ineffective and inefficient resulting in unmet needs and high rates of unnecessary complications and avoidable hospital readmissions.

Thu, 09/01/2022 - 15:49

Adaptation and learning processes of stroke survivors and family carers: a scoping review

Background: Knowledge on the processes of adaptation and learning after stroke are scarce, hindering the development of evidence-based public health strategies to promote survivors and family carers' health and wellbeing, across the post stroke trajectory. Objectives: This study aims to assess the available evidence on the processes of adaptation and learning after stroke, by mapping the main barriers and enablers according to the perspectives of stroke survivors and family carers.

Thu, 08/18/2022 - 14:30

Technological Solutions and Informal Care Culture for the Elderly: An Intervention Proposal for Training Actions

Objectives: This article proposes an intervention from the field of social sciences to improve the knowledge of informal caregivers about care for the elderly. Methods: We analyze the social and cultural relationships that support the informal care culture in Spain. Some of the most important factors that are an obstacle to the professionalization of the sector are presented. Findings: The profiles of the informal caregivers are established, highlighting that most of them are women, whether they are family members or not.

Wed, 06/29/2022 - 12:39

Support Intervention for Families and Caregivers of Palliative Care Patients (QI701)

Objectives: 1. Develop a streamlined, routine psychosocial spiritual assessment among families and caregivers of palliative care patients. 2. Develop streamlined, routine psychosocial spiritual needs intervention among families and caregivers of palliative care patients. Background: Complicated grief is intense, debilitating grief for more than six months after loss and is predicted by pre-loss depressive symptoms and unmet psychosocial needs.

Tue, 06/28/2022 - 13:55

Solution to support informal caregivers of patients with dementia

Background: The dementia is a degenerative uncurable disease. Giving its high prevalence worldwide, it is considered a major global public health concern. Patients with dementia need long-term care and support at home. Current evidence demonstrates that their informal caregivers are prone to psychiatric and cardiovascular diseases and lack formal support that can help them in their exhausting daily routine. We intend to report the creation of an ICT solution to support informal caregivers of patients with dementia, addressing identified needs.

Wed, 06/22/2022 - 13:32

Family Care Availability And Implications For Informal And Formal Care Used By Adults With Dementia In The US

Background: Despite the important role that family members can play in dementia care, little is known about the association between the availability of family members and the type of care, informal (unpaid) or formal (paid), that is actually delivered to older adults with dementia in the US.

Sun, 05/15/2022 - 21:52

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