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Editorial

Pain in persons with dementia and the direct and indirect impacts on caregiver burden

Background: Unresolved pain is related to neuropsychiatric symptoms (NPS) in persons living with dementia (PLWD), and an increase in NPS is distressing for PLWD and their caregivers. Hence, we examined whether pain in PLWD was related to caregiver burden and whether caregiver upset with NPS mediated this relationship. Methods: We examined, cross-sectionally, the relationships among pain in PLWD, caregiver burden, and upset with NPS.

Fri, 06/10/2022 - 10:52

#MoreThanAVisitor: Families as "Essential" Care Partners During COVID-19

The public health response to the current Coronavirus pandemic in long-term care communities, including assisted living, encompasses prohibiting visitors. This ban, which includes family members, has been criticized for being unfair, unhealthy, and unsafe. Against this backdrop, I examine the roles family play in residents' daily lives and care routines.

Wed, 06/08/2022 - 19:13

Living well with kidney disease by patient and care‐partner empowerment: Kidney health for everyone everywhere

An editorial is presented to the article Chronic kidney disease, associated symptoms, and treatment, including medications, dietary and fluid restrictions, and kidney replacement therapy, has disrupt and constrain daily living and impair the quality of life of patients. Topics include the development of validated patient reported outcome measures and used to assess of life participation; and monitoring of life participation has supported by regulatory agencies as a metric for quality care.

Tue, 06/07/2022 - 19:52

Informal carers in severe mental health conditions: Issues raised by the United Kingdom SARS-CoV-2 (COVID-19) Pandemic

An introduction is presented in which the editor discusses articles in the issue on topics including delusions, cognitive disturbance, and marked difficulties with social functioning and networks.

Mon, 06/06/2022 - 15:02

Challenges and complexities of meeting family needs in the intensive care unit

Whether a planned or unexpected admission, having a relative in the intensive care unit (ICU) can be a time of turmoil and extreme stress for family members as well as patients.

Thu, 01/27/2022 - 16:15

Assessment of Family Caregivers' Needs: What Employers Need to Know

It remains to be seen whether employers' increased awareness of and support for their employees' caregiving roles during the COVID-19 pandemic will result in permanent changes that better align benefits with employees' needs. Family Caregiver Assessment Assessment of family caregivers' needs and well-being separately from those of the care recipient has long been recommended as an essential component of caregiver support by organizations such as Family Caregiver Alliance and AARP.

Wed, 01/12/2022 - 13:42

We should care more about caregivers

Intro: 'Every day, about 28% of Canadians provide care for a family member, friend or neighbour, and nearly half will do so at some point. Although many Canadians with chronic conditions and disabilities need care, the most common needs requiring caregiver help are age related. With 93% of older Canadians living at home, unpaid or informal caregivers provide up to 75% of care services, which equates to about $24–$31 billion in unpaid work annually. We must and can to do more to acknowledge and support informal caregivers in bearing this burden.'

Thu, 03/11/2021 - 12:39

The importance of family members caregiving for older adults during COVID-19

Presents an argument that one of the ways that we can more properly value family caregivers is by understanding that employment policies have implications for families’ and older adults’ well-being, and that policies targeted at families of all forms can affect the health, employment, and general well-being of the nation.

Sat, 01/23/2021 - 16:41

Who Cares? An Existential Perspective of Caregiving for Individuals With a Left Ventricular Assist Device

The goal of a LVAD is to extend life expectancy, improve physical strength and quality of life, and allow individuals to be discharged home. When making decisions for a family member to receive a LVAD, caregivers are asked to confront a sophisticated technology with not only the potential to extend life expectancy and improve quality of life but also risks for complications and burdens.

Fri, 01/22/2021 - 16:22

Traumatic brain injury patients' family members' evaluations of the social support provided by healthcare professionals in acute care hospitals

Aims and objectives: The study aimed to examine traumatic brain injury (TBI) patient family members' (FMs) experiences of the support they received from healthcare professionals in acute care hospitals. Background: The length of hospitalisation following TBI is constantly decreasing, and patients may return home with several problems. FMs care for the patients at home although they may not be prepared for the patient's medical needs or financial burden of the illness. The burden which some FMs experience can impair patient care and rehabilitation outcomes.

Mon, 01/18/2021 - 17:46

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