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Journal article

Multiple Caregivers, Many Minds: Family Discord and Caregiver Outcomes

Background and Objectives: Family caregivers often have other family members helping to provide care. The purpose of our study was to examine relationships between care coordination quality among family members and the following caregiver outcomes: caregiver mental health (depressive symptoms, anxiety), social activity restrictions, and caregiver burden. Research Design and Methods: Secondary analysis was conducted using data from the 2017 Pittsburgh Regional Caregivers' Survey.

Wed, 06/08/2022 - 21:00

Multi-family therapy for bulimia nervosa in adolescence: a pilot study in a community eating disorder service

Background: Multi-family therapy for Bulimia Nervosa (MFT-BN) was developed in response to the modest outcomes following both Family Therapy and Cognitive Behavior Therapy for adolescents with BN. BN impacts individuals and their family members with high levels of carer stress. MFT-BN targets barriers to treatment including low motivation to change, hostility and criticism, negative affect alongside emotion dysregulation and common comorbidities. MFT-BN enhances treatment, providing a community of support and acquisition of emotional regulation and interpersonal skills.

Wed, 06/08/2022 - 20:55

Mortality communication and post-bereavement depression among Danish family caregivers of terminal cancer patients

Purpose: Depression is the most common negative reaction among family caregivers of terminal cancer patients, persisting to post-bereavement. A modifiable factor associated with depression is mortality communication (i.e., caregiver-relative communication about illness and impending death).

Wed, 06/08/2022 - 19:21

The monetary valuation of informal care to cancer decedents at end-of-life: Evidence from a national census survey

Background: Carers’ end-of-life caregiving greatly benefits society but little is known about the monetary value of this care. Aim: Within an end-of-life cancer setting: (1) to assess the feasibility and content validity of a post-bereavement measure of hours of care; and (2) to obtain a monetary value of this informal care and identify variation in this value among sub-groups.

Wed, 06/08/2022 - 19:07

Modifiable factors associated with behavioural and psychological symptoms of dementia among patients residing at home: The impacts of patient, caregiver and environmental variables

Objectives: The present study aimed to explore the modifiable factors of behavioural and psychological symptoms of dementia (BPSD) among patients residing at home in terms of patient, caregiver and environmental factors. Methods: A cross-sectional survey of 193 patients with dementia residing at home and their caregivers who visited the memory clinic of the Department of Neurology in a tertiary (the highest level) hospital in China from November 2018 to May 2019 was performed.

Wed, 06/08/2022 - 17:45

Moderator Role of Mutuality on the Association Between Depression and Quality of Life in Stroke Survivor-Caregiver Dyads

Background: Authors of previous research have not yet analyzed the role of potential moderators in the relationship between depressive symptoms and quality of life (QOL). Aims: The aim of this study was to examine the moderating effect of mutuality between depressive symptoms and QOL in stroke survivor and caregiver dyads. Methods: This study used a longitudinal design with 222 stroke survivor-caregiver dyads enrolled at survivor discharge from rehabilitation hospitals. Data collection was performed for 12 months.

Wed, 06/08/2022 - 17:20

Modeling types of informal care dyads by gender, primary condition, and relative age

Background: While women remain the majority of caregivers, gender parity is reported among Millennials, people of color, and LGBTQ caregivers. Such dynamics of care dyads are rarely explored in relationship with caregiver selection, social support, or care outcomes, and without standardized measures we are uncertain whether this trend is associated with youth, demographic changes, or a societal shift.

Wed, 06/08/2022 - 17:13

A Model of Factors Influencing Asthma Control among Preschool Children as Perceived by Family Caregivers

Background: Asthma is the most common non-communicable disease among children and the prevalence of childhood asthma is increasing in Vietnam. Often, due to the stage of development of the child and the illness, control of asthma in pre-school age children depends on family caregivers. To design effective interventions for asthma control, understanding family caregivers' perceptions of factors that influence such control is necessary.

Wed, 06/08/2022 - 17:06

A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings

Background: Cystic fibrosis (CF) is an inherited chronic condition that requires extensive daily care and quarterly clinic visits with a multidisciplinary care team. The limited exchange of information outside of the quarterly clinic visits impedes optimal disease self-management, patient engagement, and shared decision making.

Wed, 06/08/2022 - 16:58

Mobile geriatric team for older people: A qualitative descriptive study of relatives' views on what creates senses of security and quality of care

Background: Multimorbidity tends to increase with age. Providing care that is individualized and that focuses on the whole person rather than on separate health issues is a challenge for healthcare, due to a lack of coordination and information exchange. In the future, relatives will need to take even more responsibility for their next of kin. Objectives: The aim of this study was to explore relatives' views of aspects that create a sense of security and feelings of quality of care related to acute mobile geriatric care for older people in their own homes.

Wed, 06/08/2022 - 16:51