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Journal article

Psychological status and role of caregivers in the neuro-rehabilitation of patients with severe Acquired Brain Injury (ABI)

To investigate the relationships between (a) the psychological status of the caregiver, (b) the specific features of caregiving as perceived by the cognitive therapist in neuro-rehabilitation, (c) the caregivers' subjective approach to neuro-rehabilitation, and (d) the functional outcome of the patient. Twenty-four patients with severe acquired brain injury and their 24 caregivers participated in this observational study.

Tue, 04/06/2021 - 17:38

Psychoeducational intervention on burden and emotional well-being addressed to informal caregivers of people with dementia

Background In dementia it is necessary that a family member become an informal caregiver. This labour has social, physical and emotional repercussions on the caregiver's health. The objective was to assesses the impact of the INFOSA-DEM intervention on burden and emotional well-being among caregivers of people with dementia, evaluating the effects at 3 and 6 months. Method We adopted an experimental, non-randomised design with an intervention group and a control group.

Tue, 04/06/2021 - 17:34

The Process of Pain Management in Cancer Patients at Home: Causing the Least Harm - A Grounded Theory Study

Background: Cancer pain management at home is a complicated and multidimensional experience that affects the foundational aspects of patients and their families' lives. Understanding the pain relief process and the outcomes of palliative care at home is essential for designing programs to improve the quality of life of patients and their families. Objective: To explore family caregivers and patients' experiences of pain management at home and develop a substantive theory.

Tue, 04/06/2021 - 17:19

Primary caregivers experience of anti-psychotic medication: A qualitative study

Background: Management of schizophrenia is now shifted to the community setting and family caregivers are the primary caregivers. Managing medications is a complex responsibility of family caregivers caring for patients with mental illness. Medication compliance contributes to improve health outcomes and reduced hospitalization for the care service users; however, little is known about attitudes and perception of family caregivers. Aims and objectives: To explore family caregivers experience towards antipsychotic medications.

Tue, 04/06/2021 - 16:47

Prevalence of Informal Caregiving in States Participating in the US Patient Protection and Affordable Care Act Balancing Incentive Program, 2011-2018

Importance: The Balancing Incentives Program (BIP), established under the 2010 Patient Protection and Affordable Care Act provided federal funding for states to shift long-term care out of institutional settings and into the home.

Tue, 04/06/2021 - 16:40

Prevalence of dementia and quality of life of caregivers of people living with dementia in Malaysia

Aim: Dementia is the major cause of disability among older persons and leading physical and psychological sequelae for both the person living with dementia (PLwD) and their caregivers. The aim of this study was to determine the prevalence of dementia in Malaysia and identify the factors influencing quality of life (QoL) of caregivers of PLwD.; Methods: A nationwide survey was conducted among individuals aged ≥60 years. Cognition was assessed with the Identification and Intervention for Dementia in Elderly Africans (IDEA) tool.

Tue, 04/06/2021 - 16:25

The presence of a caregiver is associated with patient outcomes in patients with Parkinson's disease and atypical parkinsonisms

Introduction: Approximately 88% of men and 79% of women with Parkinson's disease (PD) identify an informal caregiver. Although caregivers can play a key role in supporting patients, little is known about how and whether PD patients with and without caregivers differ in terms of physical, cognitive, and mood outcomes. This study explored whether caregiver presence was associated with variations in patient presentation and outcomes in a palliative PD and atypical PD population.

Tue, 04/06/2021 - 15:02

Preparedness of Caregivers of Cancer Patients to Provide Care

OBJECTIVE This study aimed to investigate the preparedness of individuals providing care for cancer patients. METHODS This cross-sectional descriptive study was carried out with 203 Turkish cancer family caregivers in January-March 2019. The person who spent the longest time with the patient was chosen as the caregiver. The data were collected through face-to-face interviews with the "Caregiver Introductory Form" and "Preparedness Scale of the Family Care Inventory". The scale consisted of eight items, the total score range is 0-32.

Tue, 04/06/2021 - 14:59

Preferences on the Timing of Initiating Advance Care Planning and Withdrawing Life-Sustaining Treatment between Terminally-Ill Cancer Patients and Their Main Family Caregivers: A Prospective Study

Background: The Western individualistic understanding of autonomy for advance care planning is considered not to reflect the Asian family-centered approach in medical decision-making. The study aim is to compare preferences on timing for advance care planning initiatives and life-sustaining treatment withdrawal between terminally-ill cancer patients and their family caregivers in Taiwan.

Tue, 04/06/2021 - 14:51

Post-discharge medicines management: the experiences, perceptions and roles of older people and their family carers

Background Multiple changes are made to older patients' medicines during hospital admission, which can sometimes cause confusion and anxiety. This results in problems with post-discharge medicines management, for example medicines taken incorrectly, which can lead to harm, hospital readmission and reduced quality of life. Aim To explore the experiences of older patients and their family carers as they enacted post-discharge medicines management.

Tue, 04/06/2021 - 14:43