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Journal article

Cancer patients' diagnosis and symptoms and their family caregivers' self‐efficacy and social support are associated with different caregiver reactions

Objective: To describe caregiver and patient characteristics that are associated with negative and positive reactions in family caregivers (FCs) of cancer outpatients. Methods: A total of 194 FCs completed the Caregiver Reaction Assessment (CRA) scale 6 months after start of new treatment in patients with breast, ovarian, colorectal, or head and neck cancer. Linear regression models were used to examine which caregiver characteristics (i.e. demographic, self‐efficacy and social support) and patient characteristics (i.e.

Wed, 03/10/2021 - 15:46

Burden in primary family caregivers caring for uremic patients on maintenance peritoneal dialysis

Background: Managing the burden of care for patients with chronic debilitating diseases is an important issue. Herein, we assessed the burden in primary family members caring for uremic patients on maintenance peritoneal dialysis. Methods: One hundred seventy caregivers and 170 patients were recruited. Self-perceived scoring along the Zarit Caregiver Burden Scale (ZCBS), World Health Organization Five-item Well-Being Index (WHO-5), and Warwick-Edinburgh Mental Well-being Scale (WEMWBS) were determined for caregivers.

Wed, 03/10/2021 - 14:47

Association between Role Overload and Sleep Disturbance among Dementia Caregivers: The Impact of Social Support and Social Engagement

Objective: To explore the association between role overload (RO) and sleep maintenance insomnia (SMI), and the moderation effects of social support and social engagement (SE). Methods: We report a cross-sectional study using data drawn from the 2015 National Health and Aging Trends Study and National Study of Caregiving. We used multiple regression and controlled for demographics and potential confounders.

Wed, 03/10/2021 - 14:40

Assessment of burden and coping strategies among caregivers of cancer patients in sub-Saharan Africa

Background: Cancer is a devastating and debilitating chronic disease that affects both patients and family members. Available evidence has confirmed that the care of chronically ill relatives by family members can be very challenging. This is because caregiving of cancer patients often presents a high level of burden on the caregivers.

Wed, 03/10/2021 - 14:30

Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance

Objective: Caregivers of individuals with traumatic brain injury (TBI) frequently experience anxiety related to the caregiver role. Often this is due to a caregiver's perceived need to avoid people and situations that might upset or "trigger" the care recipient. There are currently no self-report measures that capture these feelings; thus, this article describes the development and preliminary validation efforts for the TBI-Caregiver Quality of Life (CareQOL) Caregiver Vigilance item bank.

Tue, 03/09/2021 - 15:49

Assessing Grief in Family Caregivers of Individuals With Alcohol Use Disorder or Substance Use Disorder using the Marwit-Meuser Caregiver Grief Inventory Short Form (MM-CGI-SF)

This study assessed grief in caregivers of family members with alcohol use disorder (AUD) and substance use disorder (SUD) using the Marwit-Meuser Caregiver Grief Inventory Short Form (MM-CGI-SF). We used snowball sampling to recruit participants who had family members with AUD and SUD. The sample was comprised of 100 caregivers of family members with AUD and 75 caregivers of family members with SUD. The original MM-CFI-SF was modified by changing the wording to reflect those with AUD and SUD.

Tue, 03/09/2021 - 15:40

Assessing and Addressing Family Caregivers' Needs and Risks in Primary Care

Objectives: To characterize current practices, barriers, and facilitators to assessing and addressing family caregivers' needs and risks in primary care.; Design: Cross-sectional, national mail-based survey.; Setting: American Medical Association Masterfile database.; Participants: U.S.

Tue, 03/09/2021 - 15:24

Assess the effectiveness of planned teaching on knowledge regarding early warning signs and management of Alzheimer's disease among care givers of elderly client

Background: More than four million people in India have some sort of Alzheimer's. This global estimate of 43.8 million people living with Alzheimer's in 2016 in the World Alzheimer's Study is close to an estimated 46 8 million in 2015. A study published on early detection and diagnosis of Alzheimer's by the Alzheimer's association. In the study, they concluded that education years among caregivers is a predictor of Alzheimer's experience. It appears that family members, especially those with lower levels of education, need to have more knowledge of Alzheimer's.

Tue, 03/09/2021 - 15:17

Application of treatment fidelity in tailored caregiver interventions

Demonstrations of the effectiveness of interventions requires evidence that the model can be implemented with fidelity. Caregiving interventions that are tailored to the individual or family require flexibility, which adds some challenges to the assessment of fidelity. This paper outlines the components necessary for examining treatment fidelity and common barriers to implementing fidelity studies, offers considerations for designing fidelity studies with tailored caregiver interventions, and aims to provide a set of procedures that can be used to guide future fidelity studies.

Tue, 03/09/2021 - 15:10

After the Burden Is Lifted: Caregivers' Recovery of Life Satisfaction After the Death or Recovery of a Spouse

Objective How does caregivers' life satisfaction shift upon the recovery of an ill spouse? Paradoxically, there is a greater increase in life satisfaction upon death than recovery of a spouse. Our analysis explores this paradox. Method We follow the two groups of exiting caregivers longitudinally for 4 years from when the partner is still in need of care until the death (N = 152) or recovery (N = 112) of a previously ill partner, comparing their trajectory of life satisfaction.

Tue, 03/09/2021 - 14:09