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Journal article

Participating in the personal care of a person living with a life-limiting illness in a hospice inpatient setting: the informal caregiver's perspective

Methods: Using semi-structured interviews, this descriptive qualitative research study examined informal caregivers' perspectives of participating in the personal care of a person living with a life-limiting illness within one hospice inpatient setting. Some 10 principal, informal caregivers of hospice inpatients were recruited by means of purposive sampling, using posters displayed in the hospice inpatient unit. Thus, participation was entirely 'opt-in'. A flash card was displayed at the beginning of each interview to determine a definition of personal care.

Sat, 12/12/2020 - 13:07

Overburdened and Underprepared: Medical/Nursing Task Performance Among Informal Caregivers in the United States

Informal caregivers are increasingly performing medical/nursing tasks in the home for adult care recipients, often without adequate support. In the current study, using data from the Caregiving in the U.S. 2015 survey (N = 1,248), we examined associations between performing medical/nursing tasks and caregiver well-being (e.g., physical strain, emotional stress, burden of care). Overall, 58% of caregivers performed medical/nursing tasks. Compared to those who did not, those performing tasks had higher risk of emotional stress, physical strain, and high burden of care.

Sat, 12/12/2020 - 12:57

Outcomes of physical activity for people living with dementia: qualitative study to inform a Core Outcome Set

Background The need for a Core Outcome Set to evaluate physical activity interventions for people living with dementia, across stages of disease and intervention settings has been established. This qualitative study precedes the consensus phase of developing this Core Outcome Set and aims to: (i) compare the outcomes identified by patients, carers and professionals to those previously reported in the literature; (ii) and understand why certain outcomes are considered important.

Sat, 12/12/2020 - 12:46

An online cross‐sectional survey of the health risk behaviours among informal caregivers

Issue addressed: Informal caregivers may experience unique barriers to engaging in healthy lifestyles, consequently increasing their risk of chronic disease.

Sat, 12/12/2020 - 12:41

One size fits all? Contextualizing family-supportive supervision to help employees with eldercare responsibilities

Eldercare can pose significant challenges for both employees and organizations wherein supervisors serve as critical linchpins. To better inform practitioners on how to assist employees with eldercare responsibilities, we investigated important work outcomes of eldercare-supportive supervision (ESS), a specific form of family-supportive supervision.

Sat, 12/12/2020 - 12:37

Older Adult Caregivers' Experiences in an Online, Interactive Mindfulness Intervention

Background.: While today's older adults experience longevity, they often manage several chronic conditions and increasingly serve as informal caregivers for aging parents, children with life-long disabilities, and spouses. Older adult caregivers managing personal chronic illness often experience significant psychosocial hardships. Objective.: The primary purpose of this study was to explore the experiences of older adult caregivers in an online, interactive mindfulness intervention.

Sat, 12/12/2020 - 12:30

Neuropsychiatric symptoms and caregiver burden in Parkinson's Disease: Mitigating the lack of awareness!

The article focuses on Parkinson's disease (PD) is quite challenging to deal with, for patients and their caregivers alike. Topics include the caregivers help PD patients deal with their symptoms even before a formal diagnosis is made, the family member while going through the tedious process of diagnosis and treatment to palliative care, and the PD commonly affects patients in the age when they are transitioning to retirement.

Sat, 12/12/2020 - 12:23

Neighbourhood relationships moderate the positive association between family caregiver burden and psychological distress in Japanese adults: a cross-sectional study

Objectives: Family caregiver burden is associated with higher psychological distress. However, little is known about the impact of neighbourhood relationships on caregivers' psychological distress. We examined whether neighbourhood relationships of caregivers moderate the association between family caregiver burden and psychological distress. Study design: This was a cross-sectional study.

Sat, 12/12/2020 - 12:14

Negative Studies Should Inform Our Research and Care: Engaging Family Members in the Care of the Critically Ill

ICU delirium is a deleterious and pervasive complication of critical illness, occurring in up to 80% of ICU patients ([1]). The reader should conclude from the study by Fiest et al ([11]) that, at this time, the family administered delirium screening tools FAM-CAM and Sour Seven should not replace intensivist administered CAM-ICU or ICDSC. We should understand that the diagnosis of delirium is difficult even with medical training; the recognition of acute delirium may be best identified through individuals most familiar with the patient, albeit with some tools and training.

Sat, 12/12/2020 - 12:07

Needs, Aggravation, and Degree of Burnout in Informal Caregivers of Patients with Chronic Cardiovascular Disease

This study aimed to answer three main questions with respect to home caregivers for people with cardiovascular disease: (1) Are the needs of home caregivers being met (and at what level)?; (2) what is the level of emotional exhaustion, depersonalization, and personal accomplishment of home caregivers?; (3) what sociodemographic variables of home caregivers are related to unmet needs and level of emotional exhaustion, depersonalization, and personal accomplishment? The study used the Camberwell Modified Needs Assessment questionnaire and the Maslach Burnout Inventory questionnaire.

Sat, 12/12/2020 - 12:02