Journal article

Background: Parents of teens with inflammatory bowel disease must prepare their children for independent disease self-management. This study characterizes the stressors and coping strategies adopted among parents of teens with inflammatory bowel disease.

The article offers information on the internet use among caregivers of urban children with persistent asthma. It discusses that Asthma as the most common chronic disease of childhood in the U.S. It mentions that Internet provides an opportunity to support patients with chronic diseases outside of traditional health care settings.

Background: The impact of pediatric atopic dermatitis (AD) on families is largely hidden from view, and AD is commonly misunderstood as a minor skin condition. Few studies have examined the full burden of AD from the family perspective.; Objective: The aim of the study was to assess the burden of AD on children and families using a caregiver-centered survey. Methods: A 72-item anonymous online survey was posted on social media sites targeted to or composed of parents of children with AD.

Background: Early onset scoliosis is a complex manifestation of a heterogenous group of disorders, often necessitating multiple medical and surgical interventions to address the spinal deformity and its accompanying comorbidities. Current literature documents decreases in the health-related quality of life of these patients; however, there is a distinct lack of published data examining the burden on their caregivers.

Aim: The purpose of this qualitative study was to describe the family experience of caring for their child with a tracheostomy due to a compromised airway during the transition from hospital to home, and to identify types of support that families request to be successful caregivers. Design and Methods: This study used a qualitative descriptive design with focus groups to answer semi-structured interview questions.

Background and Objectives: Siblings of disabled children are more at risk of developing mental illnesses. More than 50 international studies show that about 8% of children and adolescents suffer from a mental disorder, which is almost always a source of difficulties both at the interpersonal level (in the family and with peers) and at school. Healthy siblings of children with disabilities are one of the groups most at risk for consequences in psychological health and well-being.

Objective: to know how the family experiences receiving the diagnosis of chronic disease of the child. Method: this is a descriptive and exploratory study, with a qualitative approach, with 15 family caregivers of children with chronic diseases. The technique used for the production of data was the semistructured interview, using a tape recorder. The responses were transcribed and analyzed according to the Thematic Analysis.

Background: Spiritual support should be offered to all patients and their families regardless of their affiliated status with an organized religion. Aim: To understand nonreligious theistic parents’ spirituality and to explore how parents discuss death with their terminally ill children in mainland China. Design: Qualitative study. Setting/participants: This study was conducted in the hematology oncology center at Beijing Children’s Hospital. Participants in this study included 16 bereaved parents.