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Journal article

Stimulating the involvement of family members in the medication management activities of older adults through ambient displays: Qualitative study

Background: Little attention has been paid to how medication management technologies, designed for older adults, modify the participation of family caregivers. Methods: We developed a tablet-based ambient display that provides external cues to remind and motivate older adults to take their medications. This study aimed to understand the effect of ambient displays on the involvement of family members in the elderly's medication management. We conducted a 10-week study consisting of interviews administered weekly to nine elderly-caregivers.

Wed, 08/10/2022 - 14:41

Psychosocial Issues Among Primary Caregivers of Patients with Advanced Head and Neck Cancer-A Mixed-method Study

Objectives: This study aims to explore the psychosocial issues faced by the primary caregivers of advanced head and neck cancer patients with the primary objective to understand their experiences within social context. Materials and Methods: Burden and QOL of caregivers (n = 15) were quantified using Zarit Burden Interview schedule and caregiver quality of life index-cancer (CQOLC), respectively. Primary caregivers (n = 10) were interviewed using semi-structured interview schedule. Thematic analysis was employed to analyse the qualitative data.

Wed, 08/10/2022 - 13:59

Providing informal care next to paid work: Explaining care-giving gratification, burden and stress among older workers

Background: With an increasing retirement age, more older adults are combining employment with informal care-giving responsibilities. However, little is known about how older workers experience care-giving activities next to their paid jobs. Objective: This study aims to fill this gap by examining how the work situation (i.e. working hours, occupational status and perceived access to human resources practices) is associated with feelings of gratification, burden and stress in care-giving.

Wed, 08/10/2022 - 13:54

Dementia care in China: Challenges and recommendations

Background: In China, approximately 84.9% of people with dementia are cared for by family caregivers. Health professionals working in the departments where people with dementia are cared for in public tertiary hospitals are the primary sources to offer a formal diagnosis and treatment to people with dementia in China. Objective: The aim of this study was to explore family caregivers' expectations on dementia care, and the dementia knowledge and attitudes of health professionals in China.

Fri, 08/05/2022 - 22:03

Correlation between burden and quality of life among family caregiver of patients undergoing hemodialysis

Background: In Indonesia, taking care of sick family member is an obligation for other family members. Family caregivers not only involve in patients’ physical health, but also psychological and financial aspect that sometimes also cause burden for them. However, most of them often ignore their health status and wellbeing. Objectives: Therefore, current study aimed to identify the correlation between burden and quality of life among family caregiver of patients having hemodialysis. This was a cross sectional study in 80 family caregivers.

Fri, 08/05/2022 - 21:57

Co‐production in coping with care dependency in Germany: How can integrated local care centres contribute?

Background: In Germany, most care dependent people are looked after by family members at home. Professional support can help ease the burden of caring relatives and stabilise home care. Ideally, care then is provided through the co‐production of formal and informal caregivers. Objective: This article analyses how care dependent people and their family caregivers integrate professional support into their care arrangements.

Fri, 08/05/2022 - 21:43

Choral Singing Enriches Everyday Life for People With Mild to Moderate Dementia and Their Family Caregivers

Background: Dementia causes substantial suffering for affected persons and their family caregivers. Because no cure is available, it is important to investigate how alternative therapies can improve life for these individuals. Methods: For the current study, persons with dementia (PwD) were recruited from a specialized Memory Clinic in Sweden to engage in a choral singing intervention for 1 hour per week for four semesters.

Fri, 08/05/2022 - 21:36

Timely Communication Through Telehealth: Added Value for a Caregiver During COVID-19

Objective: This caregiver case study applies the lens of relational coordination theory (RC) to examine the value of telehealth as a medium of care coordination for a pediatric patient with hypermobile Ehlers-Danlos Syndrome (hEDS) during the COVID-19 pandemic. Background: The COVID-19 pandemic has placed an unprecedented burden on the delivery of healthcare around the globe and has increased the reliance on telehealth services.

Fri, 08/05/2022 - 21:28

Typologies of Dementia Caregiver Support Networks: A Pilot Study

Background and Objectives: There are nearly 18 million family caregivers in the United States assisting an older adult in need of help. Identifying the caregivers in greatest need of support requires an understanding of the current social support networks available to family caregivers and whether specific groups of caregivers are at risk of having an insufficient support network.

Fri, 08/05/2022 - 20:40

Until death do us part Adult children’s perspective of their parents’ transition from living at home to moving into a nursing home and the time after death

Background: Adult children are often key carers of frail older parents providing care for a long period of time in different care contexts. However, research concerning adult children’s caregiving experiences, from providing home-based care to facing the death of a parent in a nursing home is sparse. Thus, the aim was to explore the transition from living at home to moving into and living in a nursing home and the time after death from the perspective of next of kin to an older person.

Fri, 08/05/2022 - 20:34

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