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Journal article

Post-traumatic growth of family members of deceased cancer patients and related factors in Japan: A cross-sectional study

Objectives: This study examines the post-traumatic growth (PTG) of bereaved families who care for cancer patients and related factors in Japan. Methods: Participants included 1298 members of bereaved families of cancer patients (aged 20 or older). An anonymous self-administered questionnaire on PTG, coping, and social support was mailed to 496 bereaved families who provided written informed consent. Results: Responses were obtained from 476 bereaved families; however, since 28 families had missing data, 448 were included for the analyses.

Sat, 09/03/2022 - 14:32

Piloting an innovative knowledge translation and exchange (KTE) approach on educational resources for caregivers

BACKGROUND: Knowledge translation and exchange (KTE) is about moving knowledge into practice, involving stakeholders in an ongoing iterative process. The Alzheimer Society of Canada (ASC) approaches KTE by emphasizing ongoing collaborations with our primary audiences: people with lived experience of dementia, healthcare providers, and researchers.

Sat, 09/03/2022 - 14:25

Physical activity, confidence and quality of life among cancer patient-carer dyads

Background: Physical activity (PA) has been positively associated with health-related quality of life (HRQoL) among cancer patients and family caregivers. However, there has been no relevant research for patient-caregiver dyads. Methods: Path analysis, based on the actor–partner interdependence model (APIM), was used to examine the relationship between physical activity and health-related quality of life and explore the mediating role of emotional distress in 233 dyads.

Sat, 09/03/2022 - 14:20

Perceptions of loneliness and well‐being of psychiatric patients' families

Background and objectives: This study was conducted to determine and explain the relationship between the loneliness perceptions and well‐being of family caregivers of psychiatric patients. Methods: This cross‐sectional and descriptive study was conducted with the families of 141 individuals with mental illness, who were outpatients  psychiatry clinic of a university hospital.

Sat, 09/03/2022 - 14:14

Perceptions of and needs for e-Health solutions for elderly people with cognitive impairment, their caregivers and health care providers: A qualitative exploration

BACKGROUND: The prevalence of mild cognitive impairment (MCI) and mild neurocognitive disorder (mNCD) are steadily increasing in Canada. Information and communication technologies (ICTs) in health represent an innovation to promote home care and autonomy for people with various degrees of cognitive impairment.

Sat, 09/03/2022 - 13:56

Patient, family and productivity costs of end-stage renal disease in the Netherlands; exposing non-healthcare related costs

Background: Healthcare costs related to ESRD are well-described, but broader societal costs of ESRD are less known. Objectives: This study aimed to estimate patient and family costs, including informal care costs and out-of-pocket costs, and costs due to productivity loss related to ESRD, for patients receiving dialysis and living with a kidney transplant, using a bottom-up approach.

Sat, 09/03/2022 - 13:51

Patient, carer and healthcare professional experiences of complex care quality in multidisciplinary primary healthcare centres: Qualitative study with face-to-face, in-depth interviews and focus groups in five French multidisciplinary primary healthcare c

Objectives: To explore care experiences in multidisciplinary primary healthcare centres from the patients, carers and healthcare professionals perspectives. Methods: This qualitative study used face-to-face, in-depth interviews and focus groups. Patients with multimorbidity monitored by a General Practitioner (GP) and another professional from the health centre were recruited through purposive sampling and included with their carer. They were interviewed together while professionals were interviewed separately.

Sat, 09/03/2022 - 13:45

Psychometric evaluation of the caring ability of family caregivers of patients with cancer scale–mothers’ version for the mothers of children with cancer

Background: The experience of caring for cancer patients has adverse outcomes for family caregivers. The ability to care for a sick child is affected by the mother’s health; to empower mothers, it will be necessary to examine their caring ability. Objective: The aim of this study was to carry out a psychometric evaluation of the Caring Ability of Family Caregivers of Patients With Cancer Scale–Mothers’ Version (CAFCPCS–Mothers’ Version). Methods: The present study is a psychometric evaluation of the CAFCPCS–Mothers’ Version.

Sat, 09/03/2022 - 13:31

Participation in Informal Caregiving Among People With Arthritis: Findings From a Canadian Longitudinal Study on Aging

Objective: Despite the joint pain and significant dysfunction that characterizes arthritis, many people with arthritis continue to carry out everyday duties and responsibilities. The objective of the present study was to describe participation in informal caregiving (unpaid assistance to someone with a health issue or limitation) among people with arthritis. Methods: Analysis of baseline data from the Canadian Longitudinal Study on Aging (CLSA), a nationally representative sample of people ages 45–85 years (n = 21,241), was performed.

Sat, 09/03/2022 - 13:26

Palliative care and catastrophic costs in Malawi after a diagnosis of advanced cancer: a prospective cohort study

Background: Inclusive universal health coverage requires access to quality health care without financial barriers. Receipt of palliative care after advanced cancer diagnosis might reduce household poverty, but evidence from low-income and middle-income settings is sparse. Methods: In this prospective study, the primary objective was to investigate total household costs of cancer-related health care after a diagnosis of advanced cancer, with and without the receipt of palliative care.

Sat, 09/03/2022 - 12:58

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