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Journal article

Caregiving Across Cultures: Priority Areas for Research, Policy, and Practice to Support Family Caregivers of Older Asian Immigrants

Background: About 4.6 million older adults (aged 60 years and older) in the United States are foreign born, and Asian Americans are projected to become the largest immigrant group in the United States by 2055.

Tue, 08/23/2022 - 18:52

Caregivers’ experiences of contributing to patients’ self‐care in Chronic Obstructive Pulmonary Disease: A thematic synthesis of qualitative studies

Objectives: To identify, analyze and synthesize qualitative studies on caregivers’ experiences of contributions to the self‐care of patients with Chronic Obstructive Pulmonary Disease (COPD). Background: COPD patients perform daily self‐care behaviours to manage the disease. With aging and disease progression, patients need to rely on the contributions of informal caregivers, usually family members, for disease management. Caregivers’ normal or habitual contributions to patients’ self‐care have not yet been completely investigated.

Tue, 08/23/2022 - 18:34

Caregiver identity in care partners of persons living with mild cognitive impairment

Background: Research on caregiver identity in the context of memory impairment has focused primarily on more advanced stages of the cognitive impairment trajectory (e.g., dementia caregivers), failing to capture the complex dynamics of early caregiver identity development (e.g., MCI; mild cognitive impairment caregivers). Objectives: The aim of this study was to develop a nuanced understanding of how caregiver identity develops in family and friends of persons living with MCI.

Tue, 08/23/2022 - 18:26

Caregiver Burden in Schizophrenia and Autism Spectrum Disorders: A Comparative Study

Background: There is no study comparing schizophrenia and autism spectrum disorders (ASD) in terms of caregiver burden. Objectives: This study aims to compare the caregiver burden among family members of the patients with schizophrenia and ASD and investigate the predictive factors. Methods: A cross-sectional study with the family members living with and/or providing care to their patients was carried out.

Tue, 08/23/2022 - 18:18

How professional support for young carers benefits from a salutogenic approach

Background: Carers (including young carers) experiencing negative outcomes due to their caring role are more likely to report a lower sense of coherence. This article explores young carers' support needs for support provided by professionals. Methods: A total of 20 interviews with young carers and the persons for whom they provide care were analysed by applying Antonovsky's paradigm of salutogenesis. The dimensions of manageability, comprehensibility and meaningfulness served to categorise the data.

Tue, 08/23/2022 - 18:12

Caregiver Burden in Caregivers of Acute Stroke Patients: From a Biopsychosocial Perspective in a Turkey Sample

Objective: This study aimed to evaluate caregiver burden among caregivers of acute stroke patients with a biopsychosocial perspective in a Turkey sample. Methods: 72 stroke patients and 72 their caregivers were included the study. The mean age of the stroke patients included in the study was 65 +/- 12.39. The mean age of caregivers was 44.5 +/- 14 and 66.7% of them were females. Modified Motor Assessment Scale (MMAS), Standardized Mini Mental State Examination (SMMSE) and The Barthel Index (BI) were used to assess the patients with stroke.

Tue, 08/23/2022 - 17:20

Care Associated With Satisfaction of Bereaved Family Members of Terminally Ill Cancer Patients With Dyspnea: A Cross-sectional Nationwide Survey

Background: Terminal dyspnea in dying cancer patients is frequent and distressing, and the impact extends to their families. Families are often involved in providing care for terminal dyspnea. Objectives: This study aimed to describe various care strategies for terminal dyspnea in cancer patients hospitalized in palliative care units (PCUs), evaluate families' satisfaction with care for terminal dyspnea, and explore determinants contributing to families' satisfaction.

Tue, 08/23/2022 - 17:14

Family Caregiver Experience of Resistance to Care: Occurrence Patterns, Context, and Impact on Caregiver

Background: Although the extant literature identifies resistance to care (RTC) as one of the most frequently reported and impactful caregiver (CG) stressors, typical studies that rely on quantitative measures of RTC do not fully explain how and why RTC negatively influences CGs’ well-being. As such, it is difficult to develop specific intervention strategies to support CGs in dealing with RTC.

Tue, 08/23/2022 - 17:06

Preliminary investigation of family caregiver burden and oral care provided to homebound older patients

Objectives: Family caregivers play an important role in maintaining the oral health of homebound older adults. Thus, this preliminary study investigated family caregivers' burdens and the oral care they provide to homebound older patients. Methods: A cross‐sectional survey was conducted. A questionnaire was distributed to 230 family caregivers of homebound older patients. We used the Japanese version of the Zarit Burden Interview (J‐ZBI) to measure caregiver burden. The cut‐off score for the J‐ZBI was 21 points.

Tue, 08/23/2022 - 16:47

Informal caregivers of older Muslims diagnosed with cancer: A portrait of depression, social support, and faith

Objective: Islamic population constitute more than 20% of the world population and is growing rapidly. Nevertheless, data concerning informal caregiving to older Muslim patients diagnosed with cancer are scarce. Improving the well-being of caregivers is a vital step to optimal care for the patients themselves throughout the Muslim community and the world. This study focuses on a sample of Palestinian caregivers of older Muslim patients diagnosed with cancer living in East Jerusalem, the West Bank, and Gaza.

Tue, 08/23/2022 - 16:38

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