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A9h academic search complete - exported 11/7/2016

A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer

This paper reports on data from the Regional Study of Care for the Dying, conducted in 1990, and compares symptoms, care and service utilization for patients with chronic lung diseases (CLD) and lung cancer (LC) in the final 12 months of life. Post-bereavement structured interviews were conducted with informal carers of 449 LC patients and 87 CLD patients. The LC patients were significantly younger than those with CLD (P = 0.001) and these respondents were more likely to have been a spouse (P = 0.034).

Thu, 07/20/2017 - 15:18

Informal carers’ experience of caring for stroke survivors

Background.  Stroke is the third most common cause of death in industrialized countries and a major cause of adult disability. However, the burden of caring for stroke survivors usually rests with family members who have neither chosen nor volunteered for the role of ‘carer’.

Aims.  This paper reports on a study which aimed to describe the experience of caring for a stroke survivor at one year after stroke in Scotland.

Thu, 07/20/2017 - 15:17

Relationships between patients, informal caregivers and health professionals in care homes

Commentary on: Lindahl B, Lidén E, Lindblad BM. A meta-synthesis describing the relationships between patients, informal caregivers and health professionals in home-care settings. J Clin Nurs2011;20:454–63.

Implications for nursing practice

  • Care delivery in the home creates a unique and potentially challenging set of relational issues for the nurse, client and informal carer.

Thu, 07/20/2017 - 15:17

Keeping carers healthy: the role of community nurses and colleagues

Carers form a substantial proportion of the patients seen by primary care professionals, but their health needs are often overlooked. By recognizing and addressing the needs of the carer as well as the patient, primary care staff (including practice, community and district nurses) can protect the physical and mental health of both. Staff can start by developing simple systems for identifying and recording both patients who are carers, and patients who have carers. Primary health professionals may be able to identify specific opportunities for checking on carers’ health, e.g.

Thu, 07/20/2017 - 15:17

A qualitative analysis of changes in relationship dynamics and roles between people with cancer and their primary informal carer

It is widely accepted that cancer is an intersubjective experience that impacts upon the psychological well-being of people with cancer and informal carers, as well as on couple relationships. This qualitative study examined the nature and consequences of cancer on the relationship between informal carers and the person with cancer, from the perspective of Australian cancer carers. Sixty-two carers (42 women and 20 men), across a range of cancer types, stages and relationship dyads took part in semi-structured interviews.

Thu, 07/20/2017 - 15:17

Let relatives have a bigger role in care

Royal college of psychiatrists, leeds, 28 february

Learning disability practitioners should drop any barriers that stop relatives from contributing to the care being delivered to older service users, according to Andrew Fairburn, the medical director of Northumberland, Tyne and Wear NHS Trust.

Thu, 07/20/2017 - 15:16

Carers Assistive Technology Service

Hull Churches Home from Hospital Service (HCHfH) has been at the forefront of bringing assistive technology into the homes of the elderly with chronic illness’ through Telehealth projects since 2008.

Thu, 07/20/2017 - 15:16

The eCare Client Impact Survey (eCCIS) - Developing a new Tool for assessing Client Impacts of Telehealthcare

Telehealthcare is an increasingly popular option for health and social care organisations providing care to people in their own homes, principally providing the means to improve both the quality and efficiency of care services. However, the evidence-base for the impacts of telehealthcare in terms of general quality of life , well-being and satisfaction for older people and informal carers remains patchy. We argue that the impacts of telehealthcare lie in certain specific areas not sufficiently covered by existing measures.

Thu, 07/20/2017 - 15:16

Implications for carers of terminally ill patients dying at home

Most terminally ill patients will express a wish to die at home. To achieve this, patients must rely on the support of family carers, who may experience emotional and health difficulties in providing such care, both before and after the death. Healthcare professionals can help to relieve the burden on family carers, and there is guidance available to direct GPs and other community healthcare professionals on providing good anticipatory palliative care for patients, and support for carers.

Thu, 07/20/2017 - 15:15

Working in partnership with adult informal carers: policy and practice

In England and Wales alone, more than 5 million informal carers provide support to individuals who wish to remain within their own homes. However, research has identified that there is a limited understanding of the informal carer role among health professionals, and deficits in information sharing and the involvement of informal carers in decision making in relation to care packages. This article considers recent policy relating to this area, placing particular emphasis on the role of the district nurse in working in partnership with informal carers.

Thu, 07/20/2017 - 15:14