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Messages for integration from working with carers

Purpose – The purpose of this paper is to explore the role of carers as coordinators of care in their own right. It outlines how statutory and voluntary agencies can work together to support carers in this role, yet also help them work towards personal outcomes to sustain their own quality of life. It also proposes that approaches to working with carers can reveal lessons for integration.

Thu, 07/20/2017 - 15:19

Commissioning better outcomes for carers : and knowing if you have : a local needs and response audit support tool

We have been working together to take forward The National Carers’ Strategy, published in 2008 alongside the promotion of more personalised support and sustained independence. This paper is the fourth in a sequence of short reviews designed to stimulate debate and improve support for carers. It links closely to Commissioning for Carers [2009]. The focus of this paper is to help us all to tackle the following question: How will you, carers, and people more generally know if you have improved outcomes for people who give and receive care and support? It is a question not easily answered.

Thu, 07/20/2017 - 15:18

Engage toolkit: supporting black and minority ethnic family carers

This resource aims to provide practitioners working with children and families affected by ill health and disability with information, resources and links to help develop and implement best policy and practice for services to identify and support black and minority ethnic young carers and their families.

This site was originally funded by the Department of Health in order to provide an understanding of the needs of black and minority ethnic family carers and best practice support.

Thu, 07/20/2017 - 15:18

Using the life course perspective to study the entry into the illness trajectory: the perspective of caregivers of people with Alzheimer's disease

The research community is showing increasing interest in the analysis of the care trajectory of people with chronic health problems, especially dementias such as Alzheimer's disease. However, despite this interest, there is little research on the initial phases of the care trajectory. The fact that the first symptoms of dementia are generally noticed by those surrounding the elderly person suggests that the recognition of the disease is intimately linked to interactions not only amongst family members but also amongst friends, neighbours and health professionals.

Thu, 07/20/2017 - 15:18

Hidden patients: The relatives of patients in need of palliative care

Background: When identifying patients for palliative care, medical specialists find it necessary to disclose “hidden” patients: the patient's relatives. The issue has been discussed sporadically in Bulgaria; the present study was part of a larger investigation that examined the opinion of medical specialists, patients, and their relatives.

Thu, 07/20/2017 - 15:18

What does the 2011 Census tell us about the "oldest old" living in England & Wales?

In August 2013 the Office for National Statistics published a short story focusing on usual residents of England & Wales aged 65 or over: What does the 2011 Census tell us about older people? . This report continues this theme by looking at characteristics of the “oldest old” living in England & Wales, that is those who were aged 85 years or older on Census Day 2011 (who were born before April 1926). Most data published about older people come from household surveys, which exclude people living in institutions .

Thu, 07/20/2017 - 15:18

The use of non-invasive ventilation at end of life in patients with motor neurone disease: A qualitatitve exploration of family carer and health professional experiences

Background: Non-invasive ventilation improves quality and quantity of life in patients with motor neurone disease who have respiratory failure. Use of non-invasive ventilation may, however, result in complex clinical issues for end-of-life care, with concerns as to whether and how it should be withdrawn.

Aim: This study aimed to describe carer and health professional experiences of end-of-life care of motor neurone disease patients using non-invasive ventilation.

Thu, 07/20/2017 - 15:18

Identifying carers' needs in the palliative setting

There are an estimated half a million people in the UK who provide unpaid care for a relative or friend with a life-limiting or terminal illness at any one time. Every year thousands of people take on a caring role, whereas others find that this role has ended. This guide has been developed by an expert working group, and provides a framework for developing a carers’ assessment process. It offers advice on how to identify carers and gives an overview of the assessment methods currently used by palliative care providers.

Thu, 07/20/2017 - 15:18

Dyadic relationship scale: A measure of the impact of the provision and receipt of family care

Purpose: This study evaluated the psychometric properties of the Dyadic Relationship Scale (DRS), which measures negative and positive dyadic interactions from the perspective of both the patient and the family caregiver. An important aspect of evaluating the DRS was that it be statistically sound and meaningful for both members of the dyad. Design and Methods: The study used a cross-sectional design. Survey packages were mailed to home health care patients and their family caregivers.

Thu, 07/20/2017 - 15:18

Burden on caregivers of people with schizophrenia: comparison between Germany and Britain

Background Burden on the relatives of patients with schizophrenia may be influenced not only by patient and caregiver characteristics, but also by differences in mental health service provision.

Aims To analyse whether family burden is affected by national differences in the provision of mental health services.

Thu, 07/20/2017 - 15:18

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