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The influence of end-of-life cancer care on caregivers

The purpose of this secondary analysis was to glean from prospective data whether those caring for elderly family members recently diagnosed with cancer who ultimately died reported different caregiver depressive symptomatology and burden than caregivers of those who survived. Findings from interviews with 618 caregivers revealed that caregiver depressive symptomatology differed based on family members' survival status, and spousal caregivers experienced greater burden when a family member was near death than did non-spousal caregivers.

Thu, 07/20/2017 - 15:20

Effect of stroke on family carers and family relationships

The effects of stroke on families are considerable. Family members may struggle to adapt to a care-giving role, and relationships between stroke survivors and those closest to them are often altered by the illness. This article provides an overview of the effects of stroke on family dynamics and identifies interventions to support stroke survivors and their families during this difficult time.

Thu, 07/20/2017 - 15:20

The craft of care: family care of relatives with advanced dementia

Family caregiving is attracting more attention from policy makers and service providers, but managing a chronic condition in the home is a very complex activity that usually remains invisible to health care professionals. The study's purpose was to identify strategies family caregivers used in the home to care for their relatives who have dementia. The author collected data from interviews with 18 caregivers and two health care professionals, and from participant observation in caregivers' support groups and homes.

Thu, 07/20/2017 - 15:20

Going home to get on with life: Patients and carers experiences of being discharged from hospital following a stroke

Purpose. In this paper we aim to develop the understanding of what constitutes a ‘good’ or ‘poor’ experience in relation to the transition from hospital to home following a stroke.

Method. Semi-structured interviews were carried out with 20 people and 13 carers within one month of being discharged from hospital following a stroke. Interviews covered views of mobility recovery and support from therapy and services. Interviews were transcribed verbatim, coded and analysed in depth in order to explore the discharge process.

Thu, 07/20/2017 - 15:19

Few staff or carers prosecuted for abusing vulnerable adults, finds research

Concerns raised over number of prosecutions made against care staff or carers for ill-treatment or wilful neglect of people subject to the Mental Health Act or Mental Capacity Act. [Journal abstract]

Thu, 07/20/2017 - 15:19

Health of young and elderly informal carers : analysis of UK census data

Concern has been mounting about the health and welfare of people who provide informal care for family or friends with chronic illness. In particular, young and elderly people - vulnerable groups in their own right - may be carrying a heavy burden. The extent of the problem is not well known because estimates have been pieced together from ad hoc local studies and household sample surveys. These estimated that young carers in the United Kingdom numbered between 10,000 and 50,000, and that about one in 20 older people in Great Britain spent long hours caring for sick family members.

Thu, 07/20/2017 - 15:19

Access to health care for carers

The overall aim of the work was to inform the NHS Service Delivery and Organisation (SDO) R & D Programme about the theory and evidence on carers’ access to health care.

Thu, 07/20/2017 - 15:19

Perception and significance of an assistive technology intervention the perspectives of relatives of persons with dementia

Purpose: The aim of this study was to examine relatives’ perception of an assistive technology intervention aimed at persons with dementia (PwDs) and their relatives, and to examine whether, and how, experiences of the intervention process differed between relatives valuing the intervention to be of high, and relatives perceiving it to be of low significance. Method: A total of 47 relatives of PwDs within the Swedish Technology and Dementia project were interviewed telephonically using a modified version of the Patient perspective on Care and Rehabilitation process instrum

Thu, 07/20/2017 - 15:19

On-line information and registration with services : patterns of support for carers in England

Purpose – The paper aims to ascertain how local authorities and other services are responding to central government strategies to make support for family carers a priority.

Design/methodology/approach – A web-based audit of local authority public information for carers was undertaken (n=50). The sample covered different parts of England and different local authority types.

Thu, 07/20/2017 - 15:19

Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia : pragmatic randomised controlled trial

Objective To assess whether a manual based coping strategy compared with treatment as usual reduces depression and anxiety symptoms in carers of family members with dementia. Design Randomised, parallel group, superiority trial. Setting Three mental health community services and one neurological outpatient dementia service in London and Essex, UK. Participants 260 carers of family members with dementia.

Thu, 07/20/2017 - 15:19

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