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Towards a more liveable life for close relatives of individuals diagnosed with bipolar disorder

The life of close relatives of persons with bipolar disorder (BD) is associated with emotional distress, depression, and a high level of use of mental health care. Illness-related changes of their life situation endanger relationships, social life, finances, and occupational functioning. Understanding of facilitating conditions for close relatives is still a neglected research area. The aim of the present study thus was to explore what makes the life of close relatives of persons with BD more liveable. A lifeworld phenomenological approach was used.

Thu, 07/20/2017 - 15:14

Factors that contribute to adult children caregivers' well-being: a scoping review

The ageing of the population will increasingly result in reliance on the family for care in the community. Existing reviews have provided insights into the needs and health outcomes of family caregivers, but are disproportionately skewed towards spousal caregivers. Presently, a large majority of family caregivers are adult children. Adult children are distinct from spousal caregivers in terms of the combination of roles they occupy and the relationship they have with the care recipient. These unique considerations can have important implications for their well-being.

Thu, 07/20/2017 - 15:14

Cultural competency: professional action and South Asian carers

Inequality and exclusion are characteristic of the experience of UK South Asian communities. In health care, community needs are often not addressed by health and social welfare services. An increase in cultural competency is now part of identified policy. The aim of this paper is to examine the extent to which there is evidence of cultural competency amongst professionals concerning South Asian parents caring for a person with cerebral palsy. Semi‐structured interviews were conducted with respondents from 19 service organisations.

Thu, 07/20/2017 - 15:14

A dimensional analysis of caregiver burden among spouses and adult children

Purpose of the study: Caregiver burden is a multidimensional construct, addressing tension and anxiety (stress burden), changes in dyadic relationships (relationship burden), and time infringements (objective burden) resulting from caregiving.

Thu, 07/20/2017 - 15:14

End of life care strategy: promoting high quality care for all adults at the end of life.

This publication sets out a vision for giving people approaching the end of life more choice about where they would like to live and die.

Thu, 07/20/2017 - 15:14

Voices of care for adults with disabilities and/or mental health issues in Western Canada: what do families and agencies need from each other?

Our purpose in this paper is to report on the frustrations and unmet needs of paid, formal caregivers and unpaid, family caregivers who together provide care to adults with disabilities and/or mental health issues. We conducted eight focus group interviews between November 2010 and June 2011 in two large, urban centres and one smaller centre in Western Canada.

Thu, 07/20/2017 - 15:14

Juggling work and care: the experiences of working carers of older adults

Employers are increasingly aware of the need for family-friendly policy and practice to be developed in the workplace in order to support those who have caring responsibilities for older adults, as well as, or instead of, children. A number of factors have contributed to this growing awareness, not least demographic changes, which have resulted in the ageing of Britain’s population, with potentially greater numbers of people needing care and support in old age in the future (Bernard and Phillips, 1998; George, 2001). Alongside this, there are fewer younger people in the population.

Thu, 07/20/2017 - 15:14

Making it real for carers

Making it Real for Carers explores what each Making it Real theme means to carers and what this might look like in practice. It has been coproduced with carers and organisations including the Carers Trust and ADASS following a series of workshops across England. 

The template below provides a guide to the approach that could be taken when looking at what's working and what needs improving in relation to Making it Real for Carers. Many organisations will have their own business planning processes and frameworks and this can be used as a checklist to inform those.

Thu, 07/20/2017 - 15:14

Caring in later life: reviewing the role of older carers

There has been growing recognition of the important role that carers play in enabling vulnerable adults to remain in the community. Recent legislation has recognised the role of the family carers and encouraged the development of support services. Considerable research has been undertaken to identify the needs and the experiences of the carers in general but little specific attention has focused on older carers. This is despite the fact that they have their own unique needs which may have been hidden in previous research.

Thu, 07/20/2017 - 15:14

Assessing the applicability of GIS in a health and social care setting: planning services for informal carers in East Sussex, England

Informal carers save the state's health and social care services billions of pounds each year. The stresses associated with caring have given rise to a number of short-term care services to provide respite to carers. The Carers (Recognition & Services) Act of 1995 identified formally for the first time, the important role that unpaid carers provide across the community in Britain.

Thu, 07/20/2017 - 15:14

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