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More than one wavelength : identifying, understanding and resolving conflicts of interest between people with intellectual disabilities and their family carers

The present paper describes conflicts of interest in families which include someone with intellectual disabilities. Data were taken from a study concerned with the 1995 Carers Act. The research examined the experiences and views of 51 families who had some kind of assessment by a social services department. Cases were analysed where it was found that carers, the people for whom they cared and the assessors did not agree about such conflicts. Assessors sometimes stereotyped families and spoke of conflicts of interest when the situation was more complex.

Thu, 07/20/2017 - 15:13

Literature review of identification, needs assessment and service provision for young carers and their families

The Scottish Executive commissioned this literature review. The overall aim was to provide a comprehensive summary of existing knowledge of how young carers are identified and how their needs are assessed and met. Therefore the review largely concentrated on the interaction between young carers and their families on the one hand and service agencies on the other. Understanding the needs of young carers was an important context for the review, but was not the primary focus.

Thu, 07/20/2017 - 15:13

Nurses' experiences of caring for their own family members

There is a wealth of literature that addresses the needs of informal caregivers and the needs of health professionals caring for someone with a life-threatening illness. However, there is a paucity of research that deals with nurses who are caring for their own relative who has a life-threatening illness. This qualitative study explores the information needs, support systems available, and the impact that this experience has upon the nurse's quality of life.

Thu, 07/20/2017 - 15:13

Mixed blessings: long-term care benefits in Germany

This chapter opens with the movement to long-term care benefits in Germany in 1994 with a two-tiered system of employment-related, contribution-based long-term care insurance (LTCI) and a last resort of tax-funded social assistance. The goals were to reduce the financial burden on the states and municipalities, lessen poverty for care clients, increase long-term care services, expand home- and community-based services and support informal caring, and to prevent or delay institutionalisation.

Thu, 07/20/2017 - 15:13

Young adult carers in the UK: experiences, needs and services for carers aged 16-24

This study, funded by The True Colours Trust in association with The Princess Royal Trust for Carers, investigates the experiences, needs and service responses to the 290,000 young adult carers aged 16-24 in the UK today.

Thu, 07/20/2017 - 15:13

My mum, my dad, my daughter and the NHS

Talking from her own personal experiences, the author puts forward her view on what carers want from the NHS. 

Thu, 07/20/2017 - 15:13

Supporting family carers in the community setting

The author examines the pressures that may be experienced by carers in the community and discusses ways in which nurses can help to address these problems. 

Thu, 07/20/2017 - 15:13

Support needs of family caregivers of people who experience mental illness and the role of mental health services

Family caregivers are an irreplaceable resource for the mental health services system and the pillars on which the system currently rests. Addressing the needs of these caregivers is therefore crucial for the survival of the system. This paper will present findings from a qualitative study that aimed to explore the experiences and needs of family caregivers who relatives were at various stages of recovery from mental illness. Participants for the study were members of carer support groups as well as non-member caregivers from various regions of Sydney, Australia.

Thu, 07/20/2017 - 15:13

The drama of end of life care at home

BACKGROUND: Many terminally ill patients want to die at home. Family carers are fundamental to achieving this, but often feel anxious and unprepared for the role. Supporting them is vital in palliative care.

AIM: To explore the experiences of carers of patients dying at home, in particular their expectations and preparedness for the dying process.

METHOD: The study followed a qualitative approach. In-depth, semi-structured interviews with 15 carers were carried out.

Thu, 07/20/2017 - 15:13

Are the needs of carers being met?

This paper reports on interviews with 30 carers of working age in north-west England. Respondents revealed a general dissatisfaction with government initiatives and policy. The findings suggest that in the main either the policy, or its implementation at grassroots level, or both have little impact. 

Thu, 07/20/2017 - 15:13

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