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Identifying target groups for the prevention of depression among caregivers of dementia patients

Background: Depression in informal caregivers of persons with dementia is a major, costly and growing problem. However, it is not yet clear which caregivers are at increased risk of developing depression. With this knowledge preventive strategies could focus on these groups to maximize health gain and minimize effort.

Thu, 07/20/2017 - 15:12

Sharing letters with patients and their carers: problems and outcomes in elderly and dementia care

In a cross-sectional survey, the authors assessed the attitudes of older patients and their carers towards receiving copies of letters about them and the effects upon outcomes of sharing letters. They also studied the opinions of consultants on letter-sharing. The results were few old age psychiatrists shared letters with patients or carers, and many had concerns about this practice. In contrast, letters were considered 'very welcome' by 87% of patients and carers who received them, and 81% of those who did not would be 'very pleased' to receive them.

Thu, 07/20/2017 - 15:12

Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues

PURPOSE: (1) Describe the challenges facing relatives of persons with stroke in accomplishing their daily activities and social roles (participation). (2) Reflect on the role of rehabilitation for relatives and ethical issues that may emerge following the adoption of a family-centred approach.

Thu, 07/20/2017 - 15:12

Developing the knowledge base about carers and personalisation: contributions made by an exploration of carers' perspectives on personal budgets and the carer-service user relationship

This qualitative study aimed to explore an under-researched issue within the emerging body of research about carers and personalisation - the carer-service user relationship. It was carried out across 11 English local authorities between 2011 and 2012 and focused on the impact of a change in the service user's social care arrangements to a personal budget on this relationship.

Thu, 07/20/2017 - 15:12

Exploring factors that influence informal caregiving in medication management for home hospice patients

Objective: To explore factors that influence how informal caregivers manage medications as part of caring for hospice patients.

Methods: Semistructured, open-ended interviews were conducted with 23 informal caregivers and 22 hospice providers from 4 hospice programs in the Chicago metropolitan areas. Qualitative analysis was conducted consistent with the grounded theory approach.

Thu, 07/20/2017 - 15:12

Planning for the future with adults with a learning disability living with older carers

Planning for the future for those adults with a learning disability who live with older carers is an important aspect of the White Paper Valuing People (DoH, 2001). Indeed, such planning is essential if crisis situations are to be avoided, particularly the double shock to service users of losing their home at a time when they are also bereaved. Most research about future planning has tended to focus on the perspective of the family carer rather than that of the service user.

Thu, 07/20/2017 - 15:12

Ambiguity in practice? Carers' roles in personalised social care in England

Carers play an ambiguous role within the personalisation paradigm currently shaping adult social care practice in England. Although carers have rights to assessments and support in their own right, these rights sit uneasily alongside the practices of assessment, support planning and personal budget (PB) allocation for older and disabled people. This paper reports how 14 dyads of older and learning disabled people with cognitive and/or communication impairments and their carers viewed the roles - desired and actual - played by carers in PBs.

Thu, 07/20/2017 - 15:12

The roles of friends and neighbours in providing support for older people

Most published research on informal care for older people focuses on the support provided by relatives. The role of non-kin carers can, however, also be significant in supporting older people in their own homes. In this paper, we report the findings from an exploratory study of the support provided by friends and neighbours who are the main carers of frail older people. It draws on interviews with an opportunistic sample of friends, neighbours and older people, which explored their views about the support arrangements, the reasons why help was provided and any difficulties experienced.

Thu, 07/20/2017 - 15:12

Supporting and involving carers: A guide for commissioners and providers

The guidance looks at best practice for local commissioning partnerships to provide services to support carers of individuals with a drug problem. The document also covers how best to include carers (where appropriate) in the drug treatment of the individuals they are concerned for – citing the evidence base that demonstrates involving carers can improve outcomes for users. The guidance as a whole is predicated on the assumption that commissioners and services providers involve and consult carers in every stage of service design and delivery.

Thu, 07/20/2017 - 15:12

The human occupational impact of partner and close family caregiving in dementia : a meta–synthesis of the qualitative research, using a bespoke quality appraisal tool

INTRODUCTION: In 2009, the United Kingdom Department of Health identified the need to assist families so that people with dementia can remain living at home. Occupational therapists could support families and their loved ones at home by understanding the human occupational impact of caregiving. This impact includes how one is influenced by values and motivated to perform activities shaped by experiences and life roles.

Thu, 07/20/2017 - 15:12

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