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In sickness and in health: a survey of 3,400 UK carers about their health and well-being

There are an estimated 6.4 million people in the UK1 currently caring for a child, friend, neighbour, partner or parent or a combination of these. Carers look after family and friends who are disabled, frail or ill. They work alongside professionals, volunteers, care homes, special schools and community groups often caring for people in their own home. The hours of care that they provide for ill, frail or disabled people often comes at a cost to their own health and well-being. The impact on a carers’ health and well-being, finances and relationships cannot be underestimated.

Thu, 07/20/2017 - 15:12

Patient and carer satisfaction with 'hospital at home': quantitative and qualitative results from a randomised controlled trial

BACKGROUND: 'Hospital At Home' schemes are set to increase in the United Kingdom (UK) in response to the NHS Plan. To date, little detailed work has been done on the acceptability of these schemes to patients and their carers. AIM: To compare Hospital at Home patient and carer satisfaction with hospital care. DESIGN OF STUDY: Pragmatic randomised controlled trial. SETTING: Consecutive patients assessed as suitablefor the Leicester Hospital at Home scheme were randomised to Hospital at Home or one of three acute hospitals in the city.

Thu, 07/20/2017 - 15:11

Family support for older people in an area of demographic change and policy constraints

This paper introduces the Special Issue of four empirical studies on the provision of family support to older people that have been written members of the Family Support for Older People: Determinants and Consequences (FAMSUP) network. They have in common the use of individual-level data and recognition of the importance of demographic forces, cultural variations and public policy in shaping patterns of elder care. The four papers are also explicitly comparative, and emphasise both between- and within-country differences.

Thu, 07/20/2017 - 15:11

Emotional over-involvement can be deleterious for caregivers' health: Mexican Americans caring for a relative with schizophrenia

The study of emotional over-involvement (EOI) has focused primarily on its relationship with patients' course of illness. The authors know little about the predictors and possible consequences of EOI for caregivers. Based on past research, they tested the hypotheses that EOI is associated with worse physical and psychological health among caregivers and examined whether caregiver burden and social support may mediate this relationship.

Thu, 07/20/2017 - 15:11

Promoting the health of people with chronic obstructive pulmonary disease: patients' and carers' views

The aim of this study was to generate in-depth insights into patients' and family members' understanding of the causation, progression and prevention of chronic obstructive pulmonary disease and the role of health promotion with this population. In particular, we were interested in identifying the ways patients and family members considered that they could maximise their (patients') health, in the presence of this disease.

Thu, 07/20/2017 - 15:11

Who cares wins: the social and business benefits of supporting working carers

Research shows that the adoption of flexible working practices can save businesses’ time and money – with some companies reporting savings of over £1 million (full report, executive summary and statistical report).

Thu, 07/20/2017 - 15:11

Improving support for young carers: family-focused approaches

This paper looks at the work of 18 local authorities to create systems and support to help families with young carers. It explores some of the positive outcomes from taking a family-focused approach and showcases good practice in this field.

Thu, 07/20/2017 - 15:11

The quality of life of carers of patients with severe lung disease

Severe lung disease is known to affect the lives of not only the sufferer but also his/her family. This qualitative phenomenological study identified seven patients with severe lung disease and studied the quality of life of their carers (five female, two male) who were not fully employed, living in the same house or nearby. In a semistructured interview, the carers were asked about looking after their spouse or relative, whether they had support and the effect of caring on their health and finances.

Thu, 07/20/2017 - 15:11

Early intervention in psychosis: client and carer perspectives

AIM: To evaluate service users' and carers' views on the early intervention in psychosis service in relation to best-practice guidelines. METHOD: Both groups were sent a questionnaire on their experiences of care provided. RESULTS: The majority responded positively to many items, indicating they thought the team met best-practice guidance.

Thu, 07/20/2017 - 15:11

Exploring the collective hospice caregiving experience

Background: Collective caregiving, performed by caregivers working in pairs (informal primary and secondary caregivers working together), is common in the hospice setting. Research suggests that caregiving pairs may experience different caregiver outcomes. However, little is known about how caregiving pairs differ from solo caregivers (informal primary caregivers) on outcome measures.

Thu, 07/20/2017 - 15:11

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