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The Princess Royal Trust for Carers : social impact evaluation of five carers' centres using social return on investment

The Princess Royal Trust for Carers is a UK-wide network of 144 independent Carers’ Centres, which offer support including information, training, facilitating access to statutory services and benefits reviews. The Trust supports the network by providing a national voice for carers, and facilitating The Network to provide carers with the support they need. This report shows that an investment of less than £5 million in services provided by five carers' centres resulted in at least £73 million worth of social gains in a year.

Thu, 07/20/2017 - 15:10

Service use barriers differentiating care-givers' service use patterns

This study describes what types of service use barriers older adults' informal care-givers perceive and examines how these barriers differentiate care-giver service use patterns. Analysing the 2004 National Long-Term Care Survey and Informal Care-giver Data Set (N=1908) in the United States of America, this study reports the prevalence of service barriers for each type of service as well as for overall service use.

Thu, 07/20/2017 - 15:10

What are the most effective and cost-effective services for informal carers of older people?

Since the community care reforms of the early 1990s, practical support for informal carers has become one of the key building blocks of community care policy in England and Wales. In 2004, Linda Pickard wrote a report for the Audit Commission called The Effectiveness and Cost-effectiveness of Support and Services for Informal Carers of Older People. This summary highlights the key points.

Thu, 07/20/2017 - 15:10

Acting up : role ambiguity and the legal recognition of carers

The contribution made by informal carers to the provision of care in the community in the UK is formally acknowledged in the 1995 Carers (Recognition and Services) Act. This legislation has focussed attention, once again, on the relationship between formal services and those providing informal care. The Act has re-created a lack of clarity about the position carers hold in the carer dyad. Findings are presented here from an exploratory study about the experience of dementia.

Thu, 07/20/2017 - 15:10

Preference for place of care and place of death in palliative care: are these different questions?

Place of death is at times suggested as an outcome for palliative care services. This study aimed to describe longitudinal preferences for place of care and place of death over time for patients and their caregivers. Longitudinal paired data of patient/caregiver dyads from a prospective unblinded cluster randomised control trial were used. Patients and caregivers were separately asked by the palliative care nurse their preference at that time for place of care and place of death.

Thu, 07/20/2017 - 15:10

Short- and medium-term effects of informal care provision on female caregivers’ health

In this paper, we present estimates of the effect of informal care provision on female caregivers' health. We use data from the German Socio-Economic Panel and assess effects up to seven years after care provision. The results suggest that there is a considerable negative short-term effect of informal care provision on mental health which fades out over time. Five years after care provision the effect is still negative but smaller and insignificant. Both short- and medium-term effects on physical health are virtually zero throughout.

Thu, 07/20/2017 - 15:10

Developing partnerships with carers through good practice in information-sharing

This article highlights the importance of information‐sharing in mental health care and in particular the difficulties that can follow when practitioners do not perceive lay carers as ‘partners in care’. The findings of a survey, in which views were sought on poor information‐sharing as a barrier to engagement in mental health services, are reported. The authors conclude with a number of recommendations on improving the way information is shared.

Thu, 07/20/2017 - 15:10

Cuts and lack of assessments leave carers 'at breaking point'

Mencap finds no let up in stress for carers of people with learning disabilities as councils fail to assess their needs and make inadequate provision of short breaks. [Journal abstract]

Thu, 07/20/2017 - 15:10

Satisfaction with services among people with progressive neurological illnesses and their carers in Australia

The current study investigated the types of support networks and services accessed by people with progressive neurological illness, as well as the assessment of the usefulness of these services. The participants were 25 people with multiple sclerosis, 15 people with motor neurone disease, 23 people with Parkinson's disease, and six people with Huntington's disease. Twenty-eight professionals who worked with people with these illnesses and 41 carers of people with these illnesses also were interviewed.

Thu, 07/20/2017 - 15:10

Service user and carer involvement: beyond good intentions

The increasing focus on the involvement of people who use health and social care services and their carers in developing services and in social work education has the potential to bring significant change. This book examines the challenges in enabling people who are `experts by experience' to participate in an agenda which is largely dominated by 'top-down' managerial practices. Several themes run through the book.

Thu, 07/20/2017 - 15:10

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