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Interactive health communication applications for chronic disease: patient and carer perspectives

BACKGROUND: Interactive Health Communication Applications (IHCAs) are computer-based, usually web-based, information packages for patients that combine health information with at least one of social support, decision support, or behaviour change support. These are innovations in health care and their effects on health are uncertain.

OBJECTIVES: To assess the effects of IHCAs for people with chronic disease.

Thu, 07/20/2017 - 15:10

Self-management by family caregivers to manage changes in the behavior and mood of their relative with dementia : an online focus group study

Background: Self-management is important for family caregivers of people with dementia, especially when they face changes in their relative’s behavior and mood, such as depression, apathy, anxiety, agitation and aggression. The aim of this study is to give insight into why these changes in behavior and mood are stressful for family caregivers, what self-management strategies family caregivers use when managing these changes and the stress they experience.

Thu, 07/20/2017 - 15:10

Choice or chore? Carers' experiences of direct payments

Report using carers' experiences to assess the effectiveness and value of the direct payments system and make recommendations for improvements.

Thu, 07/20/2017 - 15:10

Older people - recipients but also providers of informal care: an analysis among community samples in the Republic of Ireland and Northern Ireland

Data on both the provision and receipt of informal care among populations of older adults are limited. Patterns of both informal care provided and received by older adults in the Republic of Ireland (RoI) and Northern Ireland (NI) were evaluated. A cross-sectional community-based population survey was conducted. Randomly selected older people (aged 65+, n = 2033, mean age (standard deviation): 74.1 years (6.8), 43% men, 68% response rate) provided information on the provision and receipt of care, its location, and the person(s) who provided the care.

Thu, 07/20/2017 - 15:10

Carer break or carer-blind? Policies for informal carers in the UK

This article examines three policy statements on informal carers published in the UK in 1999—the National Strategy for Carers, the report of the Royal Commission on Long Term Care and the note of dissent by two members of the Royal Commission. These three documents contain two rather different approaches to policy for carers. On the one hand, the National Strategy and note of dissent emphasize respite care or short-term breaks for carers, and are concerned with sustaining the well-being of carers as well as ensuring the continuation of caring itself.

Thu, 07/20/2017 - 15:10

Service-user and carer perspectives on compliance and compulsory treatment in community mental health services

This paper reports on a qualitative study analyzing service-user (SU) and carer perspectives on medication compliance and their experience of compulsory treatment. Eleven SUs and eight carers were interviewed. The research is set against the background of changes to mental health legislation in England, in the form of Supervised Community Treatment. This signals a change in community mental health practice and urges a reconsideration of concepts such as compliance, concordance and coercion.

Thu, 07/20/2017 - 15:10

Who cares in England and Wales? The Positive Care Law: cross-sectional study

Background: The inverse care law proposing that medical services are distributed inversely to population health needs, and that this law operates more completely where medical care is most exposed to market forces, was first suggested by Tudor Hart in 1971. This paper considers whether an inverse care law can be observed for the provision of informal care as well as for medical care.

Aim: Using data from the 2001 census we sought to investigate the contemporary relevance of the inverse care law.

Thu, 07/20/2017 - 15:09

Caring for a relative with dementia: the perceptions of carers and CPNs

Older people with dementia living in the community are most likely to be cared for by other older people, predominantly spouses, who will be at increased risk of stress‐related health problems themselves. Appropriate support of such carers is crucial if carer breakdown and consequent care‐receiver admission to residential homes is to be avoided. This paper examines the experience of older carers of frail older people with dementia and examines the kind of support that is provided to such carers.

Thu, 07/20/2017 - 15:09

Supporting carers in paid work

Diane Seddon and Catherine Robinson describe their study looking at the first-hand experiences of family carers who also have paid employment. 

Thu, 07/20/2017 - 15:09

An intergroup communication approach to understanding the function of compliance, outgroup typicality, and honest explanations in distant caregiving relationships : validation of a health-care communication scale

This study examines distant caregiving relationships to achieve a better understanding of the function of compliance, outgroup typicality, and honest explanations from an intergroup communication perspective. With more families living at a distance due to our increasingly mobile society, long-distance caregiving (LDC) is a unique and growing caregiving situation that caregivers must face. LDC differs for caregivers and patients in close geographic proximity due to lack of availability, lack of intimate understanding of the caregiving needs at hand, and unknown financial burdens.

Thu, 07/20/2017 - 15:09

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