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Access to Health Care for Carers: Intervention evaluaitons: Supplementary report

Almost seven million adults in Britain care for sick, elderly or disabled friends and relatives on an unpaid basis. Caring is physically and mentally demanding, and many carers say it has a negative impact on their own well-being. But despite this, carers’ health needs often go unaddressed. Sometimes this is due to professionals not recognising or understanding these needs. Sometimes it is due to difficulties getting an appointment that fits around their caring responsibilities.

Thu, 07/20/2017 - 15:22

The caregiving journey for family members of relatives with cancer: how do they cope?

Family caregivers need adequate support from healthcare professionals to complete the demands associated with caregiving with minimal impact on their own health and well-being. An optimal balance of provision of care between family and support services has not been achieved; therefore, this literature review investigates how family caregivers endure and cope with the challenges of caring for an adult relative with cancer.

Thu, 07/20/2017 - 15:22

Carer distress: a prospective, population-based study

This study investigates whether transitions into and out of unpaid caregiving are associated with increased risk for onset of or delayed recovery from psychological distress, and traces the prevalence of distress across successive years of caring activity and after caregiving has ceased. The analysis is based on data from the British Household Panel Survey covering 3000 would-be carers, 2900 former carers, and 11,100 non-carers during the 1990s; their psychological well-being was assessed at annual intervals using the General Health Questionnaire.

Thu, 07/20/2017 - 15:22

Informal care and labour force participation among middle-aged women in Spain

Informal care is today the form of support most commonly used in Spain by those who need help in order to carry out basic daily activities. The potential labour opportunity costs incurred by Spanish informal carers have not as yet been quantified. In this paper we use the Spanish subsample of the European Community Household Panel (1994–2001) to estimate an econometric model which we exploit to examine the effects of various types of informal care on labour market outcomes.

Thu, 07/20/2017 - 15:22

Valuing Carers 2011 - Calculating the value of carers' support

This paper updates the estimate of the value of carers’ support published by Carers UK in 2007 in Valuing carers – calculating the value of carers’ support.

It estimates the economic value of the contribution made by carers in the UK as a remarkable £119 billion per year – considerably more than the annual cost of all aspects of the NHS.

Thu, 07/20/2017 - 15:22

Primary caregivers of cancer patients in the palliative phase: a path analysis of variables influencing their burden

Research has shown that several variables influence the burden of primary caregivers of cancer patients staying at home in the palliative phase, but the associations between these variables have hardly been explored. The aim of this study was to examine the associations of theory-driven variables with the caregivers’ burden by means of path analysis. The sample consisted of 96 caregivers of cancer patients in the palliative phase staying at home recruited from a hospital trust in Norway.

Thu, 07/20/2017 - 15:22

Exploring the other side of cancer care: the informal caregiver

Objectives: To identify the caregiver outcomes among relatives caring for patients with cancer and to examine the patient and family caregiver variables that predicted for caregiver burden and depression.

Thu, 07/20/2017 - 15:22

Family Caregivers, Their Needs, and Home-based Palliative Cancer Services

The focus of this four-stage, longitudinal, qualitative, and quantitative study was to explore, from the caregivers perspective, the impact of caring for a person with a diagnosis of terminal cancer, in order to improve the planning and coordination of home-based hospice services in Australia. Caregivers identified five primary-care needs relating to lack of information and ineffective communication with health professionals, inadequate emotional support, the need for assistance with physical care and household tasks, support for caregiver health and social wellbeing, and financial issues.

Thu, 07/20/2017 - 15:22

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