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Equal access? A practical guide for the NHS: creating a single equality scheme that includes improving access for people with learning disabilities

A person with learning disabilities may need extra consideration and support from the NHS, as a patient, visitor or employee. Adapting information, communication and other aspects of care for them will help ensure services are also friendly to anyone who has difficulties with written or spoken English. This is a guide to support the NHS to include people with learning disabilities in their equality schemes, with practical examples of reasonable adjustments to achieve equality of access.

Thu, 07/20/2017 - 15:09

A place for support: new policies for informal carers in long-term programmes

Reviews policy trends for informal carers which have been implemented in various countries between 1996 - 1998. The article focuses on respite care and direct payments for carers of older ill and disabled adults.

Thu, 07/20/2017 - 15:09

One of our own kind: carer liaison at work

Joanne Schofield and Jack Buckley Mellor explain the value of having a carer available to offer support to other carers with relatives on a continuing care ward

Thu, 07/20/2017 - 15:09

Evidence in policy and practice: what kinds of research designs?

Summary: Over-generalization of the ‘effectiveness hierarchy’, and echoes of past paradigm wars about methodology, persist in generating conflicting judgements about the value of different research designs for evidence-based practice. A range of ways in which the worth of research is actually judged, and might be judged, are elaborated.

Thu, 07/20/2017 - 15:09

Pre-menstrual syndrome in women with Down Syndrome

Background  Prevalence of pre-menstrual syndrome (PMS) may be higher in women with Down syndrome due to syndrome specific characteristics in biochemistry, psychopathology and lifestyle. Recognition of PMS may be difficult for women with intellectual disabilities and their carers.

Method  A daily diary, used to diagnose PMS with typical women, was adapted. Following its validation, the diary was completed by 33 women with Down syndrome, then adapted, and completed by a further 32 women with Down syndrome/carers.

Thu, 07/20/2017 - 15:09

Support for Alzheimer's caregivers

Objective: Information on the shortened, 20-item version of the Perceived Social Support Scale (S-PSSS) is scarce. The purpose of this study is to evaluate the psychometric properties of the S-PSSS Family (SSfa) and Friends (SSfr) subscales. Method: Because of their common coping method of social support, a cross-sectional sample of Alzheimer’s caregivers was relevant for this evaluation.

Thu, 07/20/2017 - 15:09

Stress affects carers before patient’s first visit to a memory clinic

OBJECTIVE: To measure and compare the burden on spousal carers of patients with and without dementia who were consulting a memory clinic for the first time.

Thu, 07/20/2017 - 15:09

Making partnership work for patients, carers and service users: a strategic agreement between the Department of Health, the NHS and the voluntary and community sector

The voluntary and community sector (VCS) has a long tradition of providing services directly to the community and specific client groups. In doing so, the VCS has built up a reputation for diversity and innovation and for meeting the needs of people who often fall outside of the so-called mainstream health and social care system. People’s expectations of public services generally and the NHS in particular are increasing year on year. A one-size fits all approach is no longer acceptable.

Thu, 07/20/2017 - 15:09

Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review

Objectives: To review current understanding of the knowledge and information needs of informal caregivers in palliative settings. Data sources: Seven electronic databases were searched for the period January 1994–November 2006: Medline, CINAHL, PsychINFO, Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metalib®). Key journals and reference lists of selected papers were hand searched. Review methods: Included studies were peer-reviewed journal articles presenting original research.

Thu, 07/20/2017 - 15:09

Toward integrated services for dementia: a formal carer perspective

Purpose – Policy has identified the need for integrated dementia services for older people. However, the role of the formal carer within an integrated framework of service delivery has not been well articulated in practice. The aim of this paper is to understand the experiences of formal carers working with the context of an integrated dementia service by exploring findings from a research‐based evaluation. 

Thu, 07/20/2017 - 15:09