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Web of science - exported 12/7/2016

Rethinking Intervention Strategies in Stroke Family Caregiving

Stroke is a condition that affects both patients and family members who provide care and support. Because stroke is an unexpected traumatic event that suddenly forces family members into a caregiving role, caregivers often experience an overwhelming sense of burden, depression, and isolation; a decline in physical and mental health; and reduced quality of life. Caregiver health is inextricably linked to a stroke survivor's physical, cognitive, and psychological recovery.

Thu, 07/20/2017 - 15:15

Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: A correlational, cross-sectional study

Background: Family caregivers in palliative care often report feeling insufficiently prepared to handle the caregiver role. Preparedness has been confirmed as a variable that may actually protect family caregiver well-being. Preparedness refers to how ready family caregivers perceive they are for the tasks and demands in the caregiving role.

Aim: The aim of this study was to explore factors associated with preparedness and to further investigate whether preparedness is associated with caregiver outcomes.

Thu, 07/20/2017 - 15:15

Interventions for adult family carers of people who have had a stroke: A systematic review

Objective: A systematic review of the effectiveness of interventions for adult family carers of people with stroke, and an exploratory examination of the relationship between the conceptual basis of these interventions and their effectiveness.

Thu, 07/20/2017 - 15:15

Attitudes of Family and Professional Care-Givers towards the Use of GPS for Tracking Patients with Dementia: An Exploratory Study

This study examined the attitudes of family and professional care-givers towards the use of advanced electronic tracking such as GPS (Global Positioning Systems) and RFID (Radio Frequency Identification) for elderly people with dementia. The study revealed four principal findings. First, care-givers' views ranged from feeling obligated to use the tracking device for the sake of patients' safety through support of the use of the device for the sake of the care-givers' peace of mind and restricted support, to objection to the use of the device and respect for a person's autonomy.

Thu, 07/20/2017 - 15:15

Methodological issues in the design and conduct of public health computer assisted telephone interview surveys: the case of informal carers in Australia

The academic literature contains surprisingly little information regarding the design and conduct of surveys dealing with sensitive social issues. The present paper is an attempt to help fill that gap so that other researchers conducting similar projects can learn from our experience. In particular, I focus on the various challenges we encountered in carrying out a computer assisted telephone interview (CATI) survey of informal carers in Australia, our responses to these challenges and our learnings from this endeavour.

Thu, 07/20/2017 - 15:15

His helping hands - adult daughter's perceptions' of fathers with caregiving responsibility

Women's position as informal carers has been taken for granted in social policy and social professions, while relatively few discussions have elaborated on caring as a later life activity for men and the impact on family care. This study explores the processes connected to informal caregiving in later life through the position of adult daughters of older fathers engaged with long-term caregiving responsibilities for a partner.

Thu, 07/20/2017 - 15:15

A Comparison of the Lifetime Economic Prospects of Women Informal Carers and Non-carers, Australia, 2007

Informal care provided at home to family members with a disability is a major part of the disability and aged care system in Australia. Using data from the 2007 Household Income and Labour Dynamics in Australia survey, this study provides an updated comparison of the financial wellbeing, or lack thereof, over the working life of women primary carers and non-carers. This study focuses on selected groups of primary carers and non-carers disaggregated by partnership status, level of education and self-assessed health status.

Thu, 07/20/2017 - 15:15

Grouping cancer patients by psychosocial needs

This article describes a study in which a systematic classification of cancer patients was produced on the basis of their needs. A series of 380 cancer patients from four hospitals in the North West of England responded to a self-completion questionnaire that included a 48-item inventory of psychosocial needs covering seven needs domains (information, health professionals, emotional and spiritual, identity, practical, support, and child care). Latent class analysis was used to identify differing patterns of psychosocial need. Four patterns of need were identified.

Thu, 07/20/2017 - 15:15

When they don't die: Prognosis ambiguity, role conflict and emotion work in cancer caregiving

Informal carers of cancer patients have high rates of burden, stress, anxiety and unmet needs; yet, some describe caregiving as fulfilling. Building on the work of Thomas and colleagues, this study takes a sociology of emotions approach to understanding variations in carers of cancer patients' emotional experiences, using interview data with 32 carers of a spouse with cancer. Analysis indicates that a clearly terminal (negative) prognosis facilitates clear priorities, unambiguous emotion management and improved social bonds.

Thu, 07/20/2017 - 15:15

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