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Web of science - exported 12/7/2016

The 90-minute group: Developing a short-term intervention for informal carers of patients with advanced cancer

Caring for someone with an advanced illness has been shown to be stressful. There are few interventions aimed at supporting informal carers. To develop a group intervention that responds to carers’ needs for information and support and to describe its initial activity and response. The group runs from two palliative care services in North and South London. Ten to twelve carers are invited to attend the group that runs over 6 weeks, for 90 min a week. Facilitated by social workers, the content of the sessions is multi-professional.

Thu, 07/20/2017 - 15:22

Care coordination/home-telehealth for veterans with stroke and their caregivers: Addressing an unmet need

Background: Stroke is a life-disrupting, costly event for many stroke patients and their families. An estimated 4.8 million stroke survivors are living in the community with some level of disability, and the incidence of stroke is expected to rise with correspondingly higher costs, both in dollars and other forms of burden for families of patients with stroke.

Thu, 07/20/2017 - 15:22

Experience of burden in carers of people with dementia on the margins of long-term care

Objectives: This study aimed to identify the factors determining carer burden in a group of carers supporting people with dementia (PwD) deemed to be at high risk of moving to long-term residential or nursing home care.

Design: National data collected as part of the European RightTimePlaceCare project were analysed. This included 81 dyads of community-dwelling people with dementia and their informal carers.

Thu, 07/20/2017 - 15:22

Needs and care of older people living at home in Iceland

Background: The Icelandic old-age care system is universal and the official goal is to support older people live independently for as long as possible.

Thu, 07/20/2017 - 15:22

Family caregivers' views on coordination of care in Huntington's disease: a qualitative study

BACKGROUND: Collaboration between family caregivers and health professionals in specialised hospitals or community-based primary healthcare systems can be challenging. During the course of severe chronic disease, several health professionals might be involved at a given time, and the patient's illness may be unpredictable or not well understood by some of those involved in the treatment and care.

Thu, 07/20/2017 - 15:22

Supporting carers of people diagnosed with schizophrenia: evaluating change in nursing practice following training

BACKGROUND: United Kingdom legislation and clinical standards for schizophrenia challenge nurses to re-examine the support that they provide to carers. Nurses are in a key position to provide this support but may lack the necessary skills to do so. The training programme evaluated in the present study aimed to address this problem.

STUDY AIM: To evaluate change in clinical practice brought about by post-registration training for mental health nurses in supporting carers of people diagnosed with schizophrenia.

Thu, 07/20/2017 - 15:22

Service user perspectives on palliative care education for health and social care professionals supporting people with learning disabilities

Background and objectives: Evidence from European and American studies indicates limited referrals of people with learning (intellectual) disabilities to palliative care services. Although professionals’ perceptions of their training needs in this area have been studied, the perceptions of people with learning disabilities and family carers are not known. This study aimed to elicit the views of people with learning disabilities, and their family carers concerning palliative care, to inform healthcare professional education and training.

Thu, 07/20/2017 - 15:22

Factor structure and construct validity of the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer)

Background: The ASCOT-Carer is a self-report instrument designed to measure social care-related quality of life (SCRQoL). This article presents the psychometric testing and validation of the ASCOT-Carer four response-level interview (INT4) in a sample of unpaid carers of adults who receive publicly funded social care services in England.

Thu, 07/20/2017 - 15:22

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