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Web of science - exported 12/7/2016

Caring for adults with intellectual disabilities: perceived challenges for nurses in accident and emergency units

AIM: This paper reports a study exploring the experiences of nurses in accident and emergency units caring for people with intellectual disabilities.

Thu, 07/20/2017 - 15:23

A Strengths Perspective on Caregiving at the End-of-life

The adverse effects of caregiving provided by family members, partners, and friends for people dying at home from a life-limiting illness have been extensively documented in the palliative care research literature, yet minimal attention has been directed towards the strengths of informal carers and their subsequent growth and development.

Thu, 07/20/2017 - 15:23

From home to 'home': situating emotions within the caregiving experience

Emotions are an integral part of our daily lives, affecting who we are and how we react to the people and places around us. This emotiospatial hermeneutic has particular resonance for understanding informal carers' experiences of transitions in the place of care. Yet little work has explicitly addressed the link between emotions, care, and place. That which has focuses largely on community and the home, and largely ignores the transition of care from the home to care-home settings.

Thu, 07/20/2017 - 15:23

'Habitus and Bureaucratic Routines', cultural and structural factors in the experience of informal care - A qualitative study of Bangladeshi women living in London

This article draws on Bourdieu's notion of habitus to address the interaction between cultural and structural factors in influencing the experience of informal care among Bangladeshi women in London. The authors present a secondary analysis of a qualitative study focusing on the accounts of informal care. The data were drawn from a two-year study with Bangladeshi women aged 35—55. Thirty-two out of the 100 women in the original study were providing care, mostly in isolated circumstances and with little or no formal support.

Thu, 07/20/2017 - 15:23

Coping with newly diagnosed upper gastrointestinal cancer: a longitudinal qualitative study of family caregivers' role perception and supportive care needs

Background: Family caregivers of patients with poor prognosis upper gastrointestinal (GI) cancers are at high risk of experiencing psychological distress and carer burden. The early postoperative period is a time of high patient care needs and transition of care, with carers new to the caring role. This study aimed to explore the experiences of family caregivers of people diagnosed with upper GI cancer after surgical intervention to (1) identify their unmet supportive care needs and (2) investigate how family caregivers perceive their role during this time.

Thu, 07/20/2017 - 15:23

Stress of Caregivers in Caring for People With Stroke Implications for Rehabilitation

Stroke may bring about various impacts on functional deficits to people with stroke, as well as caregiving stress. The present study aims at exploring the relationship between the demographic characteristics of 33 caregivers and the stress experienced plus their implications for rehabilitation. The patients' admission scores on the Chinese Mini-Mental State Examination (CMMSE), modified Barthel Index (MBI), and Relatives' Stress Scales (RSS) of caregivers were collected.

Thu, 07/20/2017 - 15:23

Hidden caring, hidden carers? Exploring the experience of carers for people with long-term conditions

Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain ‘hidden carers’. We aimed to explore how carers of people with common long‐term conditions (LTCs, such as coronary heart disease or kidney disease) conceptualised their caring, and whether they struggled to identify themselves with the term ‘carer’ or access for support. We conducted semi‐structured interviews with 19 informal carers of people with LTCs recruited from local support groups.

Thu, 07/20/2017 - 15:23

Development of an instrument to measure self-efficacy in caregivers of people with advanced cancer

OBJECTIVE: Informal caregivers of people with advanced cancer experience many negative impacts as a result of their role. There is a lack of suitable measures specifically designed to assess their experience. This study aimed to develop a new measure to assess self-efficacy in caregivers of people with advanced cancer.

Thu, 07/20/2017 - 15:22

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