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Access to information

A pilot study of how information and communication technology may contribute to health promotion among elderly spousal carers in Norway

The objective of this pilot Norwegian intervention study was to explore whether use of information and communication technology (ICT) by informal carers of frail elderly people living at home would enable them to gain more knowledge about chronic illness, caring and coping, establish an informal support network and reduce stress and related mental health problems.

Thu, 07/20/2017 - 15:17

Information pathways into dementia care services: family carers have their say

This research described family carers' experiences in accessing dementia information and services in Southern Tasmania, Australia. Focus groups were conducted around three topics: (i) information available to family carers prior to a formal diagnosis of dementia, (ii) sources of information following diagnosis, and (iii) means of transfer of information.

Thu, 07/20/2017 - 15:16

Knowledge generation about care-giving in the UK: a critical review of research paradigms

While discourse about care and caring is well developed in the UK, the nature of knowledge generation about care and the research paradigms that underpin it have been subjected to limited critical reflection and analysis. An overarching synthesis of evidence – intended to promote debate and facilitate new understandings – identifies two largely separate bodies of carer-related research.

Thu, 07/20/2017 - 15:16

The intersection of employment and care: evidence from a UK case study

Working carers are a key focus of UK policies on health and social care and employment. Complementing national and European evidence, this paper presents a local case study of working carers. It draws on data from a county-wide survey containing a module on caring. Data were primarily categorical and were analysed using SPSS. Three quarters of all carers who responded to the survey were of working age: two thirds were employed and one third had been employed previously. The majority of working carers were mid-life extra-resident women.

Thu, 07/20/2017 - 15:16

Flexible, immediate support and signposting

The Dementia Advisers Service in Kent and Medway was set up to support people with a confirmed diagnosis of dementia and their carers. The service provides face-to-face contact to people in their own homes, telephone and e-mail advice and support to signpost the person with dementia and their carer to appropriate information and services.

Thu, 07/20/2017 - 15:15

Carer knowledge and experiences with menopause in women with intellectual disabilities

Overall life expectancy for women with intellectual disabilities (ID) is now significantly extended, and many will live long enough to experience menopause. Little is known about how carers support women with ID through this important stage in their lives. This study investigated carer knowledge of how menopause affects women with ID under their care and how they may help them to cope with it.

Thu, 07/20/2017 - 15:15

Who cares? The experiences of mental health carers accessing services and information

Rethink regularly carries out social survey research to monitor expert opinion on standards of mental health care. The recent Our Point of View survey, upon which this report is based, asked: are things getting better for the people who use mental health services, their families and friends at the beginning of the 21st Century in Britain?

Thu, 07/20/2017 - 15:15

What to tell dementia caregivers: the rule of threes

Objectives: To determine and prioritise what information dementia caregivers wish to know at the time of diagnosis and later on in the illness, and in what form this information should be presented.

Method: 100 carers were recruited from community mental health teams (CMHT) and a memory clinic (MC). A semi-structured Carer Interview was administered covering possible symptoms and management.

Thu, 07/20/2017 - 15:15

'Confidentiality smokescreens' and carers for people with mental health problems: the perspectives of professionals

This paper reports on some of the findings from a collaborative study funded by the Big Lottery and led by Crossroads Caring for Carers about carers for people with mental health problems. The protection and use of information in mental health are firmly rooted in ethics and professional codes, law and policy, as well as values and professional practice. While government initiatives have attempted to augment the role and rights of carers, policy guidance involving information sharing between professionals and carers has failed to deal with the practical dilemmas of patient confidentiality.

Thu, 07/20/2017 - 15:14

Low benefits take-up is barrier to a better quality of life for carers

Discusses how lack of awareness of carers' rights among professionals, the public and carers themselves has stalled progress on carers claiming carers allowances.

Thu, 07/20/2017 - 15:13