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Access to information

Direct payments: the information deficit

Direct payments can now be made to older people. But a 12-month research project has revealed that service users, carers and junior staff still have little knowledge of them. The authors of the Shield research team, Anglia Polytechnic University, and Tower Hamlets Coalition of Disabled People explain that service users are cautiously optimistic about what direct payments offer them but are anxious about the practicalities.

Thu, 07/20/2017 - 15:11

Evaluating carer information groups

The author describes carer information groups developed and run by Stockport Dementia Care Training, and the research undertaken to evaluate their effects.

Thu, 07/20/2017 - 15:11

Alzheimer's disease in real life - the dementia carer's survey

Background: Informal care from relatives provides the foundation of care for people with Alzheimer's disease (AD). It is important to understand the conditions under which carers perform their, often neglected, task. The dementia carer's survey aimed to identify carers' needs, differences between countries with regard to dementia care and the level of satisfaction of carers with utilised services.

Thu, 07/20/2017 - 15:11

Using psychosocial interventions within a high-security hospital

Psychosocial interventions have been used for many years in caring for people with mental health problems. The few interventions that have a recognised evidence base are cognitive behavioural therapy (CBT), family interventions, and education programmes for patients and carers. Describes the process of implementing these interventions in a forensic setting and makes recommendations for future practice. Outlines the training provide to staff and the importance of adequate staffing levels.

Thu, 07/20/2017 - 15:11

Life with two hats: part 2

Part 2 of a video by Viviana Fain-Binda for carers of people with dementia. In the video carers of people with dementia talk about the importance of finding out about and accessing services available. It also stresses the benefits of joining local support groups to find out information and provide support.

Thu, 07/20/2017 - 15:10

Access to health and social care services and information

Aim: The aim of this study was to explore carers' perceptions of their ability to access a range of health and social care services, including information about the services. Method: A total of 151 participants, who were all members of a charity set up and run by informal carers of people with learning disabilities, were given semi-structured questionnaires, which yielded qualitative and quantitative data. Further data came from two focus groups.

Thu, 07/20/2017 - 15:10

Partners in care: who cares for the carers?

Little time may be taken to listen to what carers have to say or explain clinical and service policies. The odd 5 minutes at the end of a busy clinic is not enough; being paraded in front of the ward round is simply unacceptable, but it still happens. A 20-mile trip for family carers just as imprisoned by the patient’s mental illness, geographically and financially, may be impossible.

Thu, 07/20/2017 - 15:10

What's in a name

Argues why the nearest relative role has important lessons for the roles of the nominated person and carer which will replace it in the next Mental Health Act.

Thu, 07/20/2017 - 15:09

Paying the piper and calling the tune? The relationship between parents and direct payments for people with intellectual disabilities

Background  The aim of this paper is to investigate the role parents are playing in direct payments provision for their son or daughter with intellectual disabilities.

Thu, 07/20/2017 - 15:09

Understanding the information behaviours of carers of people with dementia: a critical review of models from information science

Objectives: The aim of this review is to discuss how existing models of information behaviour may help to improve provision of information to carers of people with dementia. The article analyses existing models of information behaviour derived from information science, describes studies that have examined these models in relation to health and discusses ways in which they help to understand the information behaviours of carers of people with dementia.

Thu, 07/20/2017 - 15:09

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