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Does blaming the patient with lung cancer affect the helping behavior of primary caregivers?

Purpose/Objectives: To examine whether primary caregivers' helping behaviors are predicted by their illness attribution reactions as proposed in Weiner's model.

Thu, 07/20/2017 - 15:18

Informal caregivers' experiences of formal support in a changing context

As the location of long-term care of elderly people moves to homes and communities, and responsibility for care shifts to families, understanding the experience of people in this situation is necessary to ensure that support is appropriate, accessible and effective. The present paper explores informal caregivers’ and recipients’ relationships with formal support, drawing on thematic and narrative analysis of 30 in-depth interviews with self-identified family caregivers conducted over a year in a mid-size city in Ontario, Canada.

Thu, 07/20/2017 - 15:16

Nursing support for family members of critically ill adults

Researchers have identified the needs of family members of critically ill adults, explored their experiences, and investigated interventions. To address a gap in the theoretical knowledge about how nurses help these individual, the authors developed a grounded theory of nursing support from the perspective of family members. Results indicated that family members were initiated into a cycle of Work to meet perceived responsibilities to Get Through the experience.

Thu, 07/20/2017 - 15:15

Family caregivers' compassion fatigue in long-term facilities

A Canadian study offers staff in the UK insight into the feelings of hopelessness and sadness that can engulf relatives assisting with care, say Beth Perry and colleagues

Aim: The aim of this study was to explore the presence of compassion fatigue in family carers who assist staff with care of older relatives in long-term settings.

Method: arrative data were collected through observation and conversations with five purposively selected family carers.

Thu, 07/20/2017 - 15:15

A longitudinal study of home care clients and their informal carers

The objective of the longitudinal study was to monitor physical and cognitive changes in a population of 330 older people being supported at home by health services. The participants were 75 years and older and classified as having moderate-to-high needs. A total of 210 primary informal carers were recruited to determine their specific needs and how they coped as dependency levels of their care-recipients changed. Data were collected using six different tools. Two questionnaires were mailed out to participating carers.

Thu, 07/20/2017 - 15:15

Voices of care for adults with disabilities and/or mental health issues in Western Canada: what do families and agencies need from each other?

Our purpose in this paper is to report on the frustrations and unmet needs of paid, formal caregivers and unpaid, family caregivers who together provide care to adults with disabilities and/or mental health issues. We conducted eight focus group interviews between November 2010 and June 2011 in two large, urban centres and one smaller centre in Western Canada.

Thu, 07/20/2017 - 15:14

Canadian Alzheimer's disease caregiver survey: baby-boomer caregivers and burden of care

Objective: Alzheimer's disease (AD) burdens not only the person, but also the person's caregiver(s). This burden has been linked to negative health effects for caregivers. To that end, a survey of Canadian caregivers of persons with AD/other dementias was conducted to investigate the social, physical, psychological and financial impact of AD and/or dementia-related conditions on caregivers' quality of life.

Thu, 07/20/2017 - 15:14

An interprofessional approach to shared decision making : an exploratory case study with family caregivers of one IP home care team

Background: Within the context of an exploratory case study, the authors assessed the perceptions of family caregivers about the decision-making process regarding relocating their relative and about the applicability of an interprofessional approach to shared decision making (IP-SDM). They also assessed perceptions of health professionals and health managers about IP-SDM. 

Thu, 07/20/2017 - 15:12

One million and counting: the hidden army of young carers in Canada

The term ‘young carer’ refers to those youth under the age of 25 years who provide substantial unpaid support to a family member due to factors including, but not limited to, familial or parental absence, disability, mental health issue(s) or problems with alcohol and/or other drugs. In the UK, national statistics have been integral to tracking the prevalence of young carers while serving as an important tool towards the development of (and justification for) a national legislative framework supporting these youth.

Thu, 07/20/2017 - 15:11