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Advocating for a parent with dementia in a long-term care facility: The process experienced by daughters

Daughter caregivers of elders with dementia become their parents' advocates over time. This role takes on even greater importance when one or both parents are placed in a long-term care facility. This article presents the results of a qualitative study aimed at explaining how this advocacy role evolves following institutionalisation. In-depth interviews were conducted with daughters (N = 14) of an institutionalised parent with dementia and selected using a theoretical sampling procedure.

Thu, 07/20/2017 - 15:10

Major depression among medically ill elders contributes to sustained poor mental health in their informal caregivers

Background: no longitudinal studies have addressed the effect of late life depression on the physical and mental health status of their informal caregivers.

Objective: to examine whether a diagnosis of depression in older medical inpatients is associated with the physical and mental health status of their informal caregivers after 6 months, independent of the physical health of the care recipient.

Design: longitudinal observational study with 6-month follow-up.

Thu, 07/20/2017 - 15:10

Community-based primary health care for older adults: A qualitative study of the perceptions of clients, caregivers and health care providers

Background: Older persons are often poorly served by existing models of community-based primary health care (CBPHC). We sought input from clients, informal caregivers, and health care providers on recommendations for system improvements.

Methods: Focus group interviews were held with clients, informal caregivers, and health care providers in mid-sized urban and rural communities in Ontario. Data were analyzed using a combination of directed and emergent coding. Results were shared with participants during a series of feedback sessions.

Thu, 07/20/2017 - 15:10

Preferences for place of care and place of death among informal caregivers of the terminally ill

Objectives: (1) To determine informal caregivers perceptions about place of care and place of death; and (2) to identify variables associated with a home death among terminally ill individuals who received in–home support services in a publicly funded home care system.

Thu, 07/20/2017 - 15:10

When dementia is in the house: needs assessment survey for young caregivers

To learn more about the needs and experiences of young carers for patients of frontotemporal dementia (FTD) in order to create a relevant support website for young caregivers to dementia patients.

Two focus groups were held with a total of fourteen young carers aged 11-18. The data corpus was collected through a semi-structured interview facilitated by a medical journalist who had prior experience as a caregiver to a patient with FTD. The transcripts were narrowed to a dataset for descriptive analysis using a coding scheme to reveal the main themes of their responses.

Thu, 07/20/2017 - 15:09

Young Carers in Canada: An Invisible Population

The article provides an overview on what is known about young carers in general and identify in and services in Canada. Young carers are defined as being anyone under the age of 18 years who is the primary caregiver in the family due to the parental illness, disability or addiction. It discusses the potential short and long term consequences of having to take on a care giving role within one's family that is age appropriately greater than one would expect in most families.

Thu, 07/20/2017 - 15:09

Impact of caregiving: listening to the voice of informal caregivers

Long-term care of the elderly and the disabled rests on a vast network of informal caregivers. This qualitative study examined the effects of caregiving on the health and wellbeing of a small, non-representative sample of urban women caregivers. These 11 informants participated in two interviews. Health was conceptualized in a holistic manner, consistent with the view of the World Health Organization and Health Canada. The caregiving experience, as described in this study, was life changing and consuming.

Thu, 07/20/2017 - 15:09

Linkages among empathic behaviors, physical symptoms, and psychological distress in patients with ovarian cancer: a pilot study

Purpose/Objectives: To explore linkages among empathic responding by informal caregivers with the physical symptom experiences and psychological distress of patients with ovarian cancer. Design: Preliminary, descriptive, correlational, and cross-sectional. Setting: Psychosocial oncology support group in Canada. Sample: Convenience sample of 13 women with stage I-IV ovarian cancer with the majority diagnosed with disease recurrence. Methods: Data were collected on a single telephone call using the Hospital A

Thu, 07/20/2017 - 15:08

We share the care: family caregivers' experiences of their older relative receiving home support services

Although both family care and home support are considered essential components of home-based health-care, the experiences of family caregivers who have a relative in receipt of home support services are not well understood. Little is known about what aspects of home support services assist family caregivers or hinder them in their caregiving. This study examines family member’s experiences of the home support services received by their elderly relatives.

Thu, 07/20/2017 - 15:08

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