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Supporting informal caregivers of people with advanced cancer: a literature review

Informal carers are people who provide care without a specific professional role. They provide diverse caregiving supports including disease-related problems, side effects of treatment and psychosocial impacts. This paper reports on a comprehensive review of caregiving literature, focusing specifically on cancer caregivers. The paper presents five observations drawn from the literature in order to make recommendations about how caregivers of people with advanced cancer can best be supported.

Thu, 07/20/2017 - 15:20

Social inclusion for the mental health of informal caregivers of Alzheimer disease's patients: The role of reemployment strategies of socially excluded

Alzheimer's disease (AD) is a one of the leading cause of dependency among older adults and of institutionalization in Europe. The number of people with AD is estimated in 10 million people and the cost of the disease has been recently estimated in 100.000 million of euros per year in the European Union (European Brain Council, 2011). There is nowadays no effective treatment of the disease.

Thu, 07/20/2017 - 15:19

Carers

Explores the importance of the Children Bill for both young carers and young adult carers in England and Wales. Scope of the Children Bill; Number of children and young people under 18 that are young carers, according to the 2001 census data; Reason many of the young adult carers preferred to seek support and information from the person who ran the young carers service when they are involved.

Thu, 07/20/2017 - 15:19

Caring for Carers: Recognising, Valuing and Supporting the Caring Role

The article focuses on a strategy meant for providing support for carers across Northern Ireland. The strategy quotes census figures indicating that there are more than 185,000 unpaid carers in Northern Ireland, equating to about 11 percent of the population. Carers need some help and support to enable them to continue in their caring role. The strategy include the identification of those acting in a caring role, information for carers, support services, the special needs of young carers and training and employment.

Thu, 07/20/2017 - 15:19

Confronting the care penalty: the case for extending reasonable adjustment rights along the disability/care continuum

Informal caring for adults with disabilities is a source of unacceptable disadvantage in employment, finances, social inclusion, and health; here termed the ‘care penalty’. This penalty can be appropriately tackled through equality law, making care a ground for unlawful discrimination. Carers are not adequately protected from indirectly discriminatory disadvantages by other grounds such as sex and disability. Nor are carers adequately protected by carer-specific provisions such as the UK right to request flexible working.

Thu, 07/20/2017 - 15:19

Economic Analysis of Formal Care, Informal Care, and Productivity Losses in Primary Care Patients who Screened Positive for Dementia in Germany

Background:The majority of people with dementia (PwD) live at home and require professional formal care and informal care that is generally provided by close relatives. Objective:To determine the utilization and costs of formal and informal care for PwD, indirect costs because of productivity losses of caregivers, and the associations between cost, socio-demographic and clinical variables. Methods:The analysis includes the data of 262 community-dwelling PwD and their caregivers.

Thu, 07/20/2017 - 15:19

Experiences and health care needs of older people with End Stage Renal Disease managed without dialysis in Thailand during the last year of life

BACKGROUND: There is a growing population of older patients with End Stage Renal Disease (ESRD) managed without dialysis in Thailand, and services have yet to be developed to specifically respond to the needs of this group. As a consequence this population are likely to have unmet needs with respect to health care and suffer from symptoms that could be better managed.

OBJECTIVE: This qualitative study explored experiences and health care needs during the last year of life among older people with ESRD, managed without dialysis, from the perspective of bereaved carers.

Thu, 07/20/2017 - 15:18

‘It made me realise that I am lucky for what I got’: British young carers encountering the realities of their African peers

Despite a growing number of studies comparing the experiences of young carers in the global North and South, little has been done to explore young carers' representations of their global peers. In this paper we examine the reflections of British young carers after having visited an exhibition displaying photos and stories articulating the caregiving experiences of young carers in Zimbabwe and Kenya. We do this to explore the role of safe and transformative social spaces in facilitating positive identity constructions.

Thu, 07/20/2017 - 15:18

myShoes - the future of experiential dementia training?

Purpose – The purpose of this paper is to discuss the use of virtual reality (VR) for experiential learning in dementia training. People have different perceptions and understanding of what it is like to live with dementia, particularly those that are new to dementia care, whether in a professional capacity, or as a friend or family member. Arguably the most powerful way in which to enhance understanding is to give people a glimpse of what living with dementia might be like.

Thu, 07/20/2017 - 15:18

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