carers

The diagnosis of a chronic progressive condition such as multiple sclerosis (MS) can impact on many aspects of daily life. Living with, and caring for, an individual with such a condition is likely to have emotional and psychological consequences. We carried out semi‐structured interviews with nine partners and analysed the interview transcripts using grounded theory (Strauss & Corbin, 1998), the phase presented in this article formed part of a larger overall study that explored the impact of living with MS for partners and a family.

Objective: Alzheimer's disease (AD) burdens not only the person, but also the person's caregiver(s). This burden has been linked to negative health effects for caregivers. To that end, a survey of Canadian caregivers of persons with AD/other dementias was conducted to investigate the social, physical, psychological and financial impact of AD and/or dementia-related conditions on caregivers' quality of life.

Objective: We reviewed evidence on the cost-effectiveness of prevention, care and treatment strategies in relation to dementia.

Methods: We performed a systematic review of available literature on economic evaluations of dementia care, searching key databases and websites in medicine, social care and economics. Literature reviews were privileged, and other study designs were included only to fill gaps in the evidence base. Narrative analysis was used to synthesise the results.

Designed exclusively for those providing care within the care home setting, this two part title introduces carers to the values that underpin person-centred care. It assists them to develop their understanding of how principles of care should be reflected in their day-to-day practices by exploring the values of individuality, rights, choice, privacy, independence, dignity, respect and partnership. It goes on to look at the right service users have to take risks in their lives and how the care plan and risk assessment can assist to protect individuals from harm.

Background and aim: While the number of people suffering from dementia in the Netherlands will double in the next 25 years, there are no plans to expand the capacity of residential care facilities for these patients. This will almost inevitably lead to an increase in the burden placed on informal carers. We investigated how caregivers living with a loved one who has dementia experience their caregiving situation.

Describes a support group where family carers new to the challenges of dementia can learn more without loosing their privacy. 'One Day at a Time' is a series of monthly talks run by the Dementia Development Team within social services in Kensington and Chelsea who want to develop their understanding and knowledge of dementia, without disclosing all in an emotional support group.

The profile of adult social care has probably never been higher and one of the biggest questions is how to manage demographic pressures on services as resources reduce, while aiming to improve outcomes and maintain quality. One group which brings these issues into sharp focus is the rising number of people with dementia and their carers. In this particular instance we have the additional focus given by the launch of the Prime Minister's dementia challenge.

Optimal palliative care cannot be realized unless nurses have a full understanding of what the patient’s family is experiencing. There is a gap in nursing knowledge related to informal care and ethnic minorities. The aim of this retrospective qualitative exploratory study was to investigate the experiences of Bangladeshi informal carers living in the UK, associated with caring for a dying relative. Semi-structured interviews using an interpreter were carried out and patient notes were examined. Four categories emerged from the data: caring, support, communication, and home and family.

Purpose: Although persons with Alzheimer's disease (AD) require increasingly more assistance with activities of daily living as their disease progresses, the caregiving environment has received little attention as a source of predictors of their survival time.