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Support groups for dementia caregivers Predictors for utilisation and expected quality from a family caregiver's point of view: A questionnaire survey PART I

Background: Support groups have proved to be effective in reducing the burden on family caregivers of dementia patients. Nevertheless, little is known about the factors that influence utilisation or quality expectations of family caregivers. These questions are addressed in the following paper.

Methods: The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in Germany. Qualitative and quantitative data from 404 caregivers were analysed using content analysis and binary logistic regression analysis.

Thu, 07/20/2017 - 15:14

A weight off my mind: exploring the impact and potential benefits of telecare for unpaid carers in Scotland

A study looking at telecare from a carers' viewpoint is briefly reviewed in this article. The study drew on the experiences of carers through interviews and focus groups. It identified that some stakeholders, notably healthcare professionals, lacked awareness of the value and availability of telecare and that this often resulted in limited referrals and a limited range of telecare equipment accessed by carers.

Thu, 07/20/2017 - 15:14

Dementia risk reduction: it's never too early, it's never too late

There are 850,000 people living with dementia in the United Kingdom today, and there is currently no diseasemodifying intervention available for any form of the condition. Costs from dementia to the UK economy are currently estimated to be over L24 billion a year and approximately 700,000 people are informal carers for people who have dementia. While age is the biggest risk factor for developing dementia, the condition is not an inevitable part of ageing. Other factors such as medical history, lifestyle and genetics may also contribute to the risk of developing dementia.

Thu, 07/20/2017 - 15:14

Good days and bad days: the lived experience and perceived impact of treatment with cholinesterase inhibitors for Alzheimer's disease in the United Kingdom

Although heralded as a major breakthrough in the treatment of Alzheimer’s disease the experience and impact of using cholinesterase inhibitors (CHEIs) from the perspective of people with Alzheimer’s disease has not been widely reported. This qualitative study reports the lived experience of CHEI users and the perceived impact of the treatment. The views and experiences of 12 older people referred for memory problems or receiving treatment and 11 associated family carers were obtained using a combination of semi-structured interviews and focus groups.

Thu, 07/20/2017 - 15:14

Longitudinal changes in the amount of informal care among publicly paid home care recipients

Purpose: This study examined how the amount of informal care received by disabled elders changes when they are receiving publicly paid home care, and whether formal service use, disability, caregiving arrangements, and demographic characteristics of older adults predict changes in the amount of informal care. Design and Methods: Hierarchical linear models were estimated, using 3-year data (12 repeated observations) collected from elderly participants (N = 888) in Michigan's Home- and Community-Based Medicaid Waiver Program. 

Thu, 07/20/2017 - 15:14

Growing older with learning disabilities: the GOLD programme

This paper provides an overview of the GOLD programme at the Foundation for People with Learning Disabilities. It describes the work of the 13 funded projects in a context of wider research concerning ageing and learning disabilities. Particular attention is given to those people living with older family carers and those living in residential services for older people. The picture is of services that offer little confidence for the future, as people with learning disabilities grow older.

Thu, 07/20/2017 - 15:14

Alzheimer's Society Derby branch: a comprehensive programme of support for people with dementia and their carers

This article describes some of the more recently established ways the Alzheimer's Society is using to support people with dementia and their carers living in the area of Derby, UK. The article covers Alzheimer Cafes, pamper days, arts and crafts days, and a carers support group.

Thu, 07/20/2017 - 15:14

Supporting mental health carers' role in recovery

The project was set up to improve the support offered to carers of people with serious mental health problems through supportive and educational group workshops. It aimed to empower carers by improving their understanding of mental health services and care; and to develop a model of carer and mentoring support. From the 15 carers recruited, five left due to personal circumstances leaving a core group of 10. The group also contained a high proportion of black and minority ethnic carers.

Thu, 07/20/2017 - 15:14

Towards a more liveable life for close relatives of individuals diagnosed with bipolar disorder

The life of close relatives of persons with bipolar disorder (BD) is associated with emotional distress, depression, and a high level of use of mental health care. Illness-related changes of their life situation endanger relationships, social life, finances, and occupational functioning. Understanding of facilitating conditions for close relatives is still a neglected research area. The aim of the present study thus was to explore what makes the life of close relatives of persons with BD more liveable. A lifeworld phenomenological approach was used.

Thu, 07/20/2017 - 15:14

Youth South Asians with learning disabilities: still socially excluded?

This paper report on a study undertaken in Glasgow of young South Asian people with learning disabilities and their carers, and explores the extent to which they are socially excluded. Although there is an increasing political emphasis on the inclusion of people with learning disabilities, the families concerned continue to experience isolation, both socially and in terms of service provision. Access to service is often problematic, because of linguistic and cultural barriers and families appear to be reluctant to use day centres.

Thu, 07/20/2017 - 15:14

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