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Capturing the Huntington's disease spousal carer experience: a preliminary investigation using the ‘Photovoice’ method

The purpose of this exploratory study was to capture and describe the experiences of family carers of Huntington's disease (HD) patients, specifically in relation to their Quality of Life (QoL). Visual representations of QoL were gathered using ‘Photovoice’. Five spousal carers photographed and described elements of their life in which they felt their QoL was being enhanced or compromised. Using content analysis, nine manifest themes were identified and tentative latent inferences were made in relation to these themes.

Thu, 07/20/2017 - 15:13

A meta-analysis of interventions for informal stroke caregivers

The purpose of this study is to examine the effectiveness of the interventions for improving mental health of caregivers of people with stroke by synthesizing individual studies. A meta-analysis was performed to summarize findings of intervention studies of caregivers of elderly stroke patients. Additionally, a sensitivity analysis and a publication bias were tested.

Thu, 07/20/2017 - 15:13

The use of long-term care services by the Dutch elderly

The main focus of this paper is the development of an appropriate framework to characterize the process of long-term care utilization by the Dutch elderly. Three broad categories of care services are considered, namely, informal care, formal care at home, and institutional care. The use of these care alternatives is modelled jointly, and stochastic dependence is allowed between the various care options. Special attention is given to the concept of health status and to the potential endogeneity of this variable in the model.

Thu, 07/20/2017 - 15:13

Patients' and carers' experiences of gaining access to acute stroke care: a qualitatitve study

Background Rapid access to acute stroke care is essential to improve stroke patient outcomes. Policy recommendations for the emergency management of stroke have resulted in significant changes to stroke services, including the introduction of hyper-acute care.

Objective To explore patients’ and carers’ experiences of gaining access to acute stroke care and identify the factors that enabled or prevented stroke from being treated as a medical emergency.

Thu, 07/20/2017 - 15:13

The development of a screening tool to identify carers in a general practice by a large-scale mailed survey: the experience in one Scottish general practice

Aims and objectives.  To determine the feasibility of a screening tool to identify carers in a general practice.

Thu, 07/20/2017 - 15:13

A.S.T.R.I.D. : a social and technological response to meeting the needs of individuals with dementia and their carers : a guide to using technology within dementia care

This guide considers the potential of assistive technology to contribute to the care of people with dementia in the community. It has been written by members of the ASTRID project, involving the UK, Norway, the Netherlands and Ireland. It contains an introduction to the project, an account of technology in action, discussion of how to incorporate technology in a needs assessment, how to obtain and use assistive technology, and a review of ethical issues.

Thu, 07/20/2017 - 15:13

Care home design for people with dementia: what do people with dementia and their family carers value?

Objectives: To report on the views of people with dementia who live in care homes and their family carers on aspects of design that are important to them, and discuss these in relation to developing physical care environments that respond to the wishes of people with dementia and their family carers.

Thu, 07/20/2017 - 15:13

Development of the carer well-being and support (CWS) questionnaire

Purpose – A psychometrically validated measure is needed to evaluate outcomes in carers of people with mental health problems, including dementia. This study aims to develop and validate the Carer well‐being and support questionnaire (CWS).

Thu, 07/20/2017 - 15:13

Working with carers in educational settings: developing innovations in practice

Purpose – It is generally agreed that carers in mental health care play a vital role in helping people to maintain their place in the community and reducing the time clients spend in hospital or residential settings. The purpose of this paper is to develop a conceptual approach to involving carers in higher education by acknowledging their contribution to improving practice and identify the impact upon student learning in mental health and social care professions. 

Thu, 07/20/2017 - 15:13

The well-being of young people who care for a dependent relative: An interpretative phenomenological analysis

Developing health care systems have placed an emphasis on unpaid, informal care giving from family members as a community health resource. It is estimated that there are between 19,000 and 51,000 young carers in the UK who are at increased risk of physical and psychological ill health. Therefore, the aim of this study was to explore the personal experiences of young carers in relation to their well-being using interpretative phenomenological analysis (IPA). Semi-structured interviews were carried out with five young carers and the verbatim transcripts served as the data for an IPA.

Thu, 07/20/2017 - 15:13