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“How can I take a break?” coping strategies and support needs of mental health carers

Caring for a family member or friend can have major impacts on the personal life and wellbeing of carers. Identifying those who experience poor subjective wellbeing, factors that contribute to this, and ways in which services can be more effectively provided is essential in supporting carers in their role. This study surveyed carers from across New South Wales and found that carers of people with mental health issues reported poorer health and mental health themselves than any other group of carers, despite being more likely to access supportive services.

Thu, 07/20/2017 - 15:12

Contributory factors

Looks at how Hertsmere Primary Care Trust and West Herts community health council are developing an initiative to involve patients, carers, families and general practitioners. They invited a fifth of patients to get involved in a shadow patients' forum and was heartened by people's eagerness to give something back.

Thu, 07/20/2017 - 15:12

The Facebook effect

Social networking technology is making it easier for patients' friends and family to provide support. Tyze a private social platform which has been developed in Canada, is one example. It consists of a shared calender, a messaging system and a 'CareWall' where stories and updates can be posted. Two users of the system are briefly profiled and the benefits they get from the system explained. 

Thu, 07/20/2017 - 15:12

New approaches to supporting carers' health and well-being: evidence from the national carers' strategy demonstrator sites programme: report summary

The National Carers’ Strategy Demonstrator Sites (DS) programme was developed by the Department of Health (DH) as part of the commitments made in the 2008 National Carers’ Strategy (HMG, 2008). The DS programme, delivered across England, comprised 25 partnerships. With a delivery period of 18 months, each site was expected to develop new, innovative services for carers, or to extend existing provision if effective arrangements were already in place.

Thu, 07/20/2017 - 15:12

Time-bound opportunity costs of informal care: Consequences for access to professional care, caregiver support, and labour supply estimates

The opportunity costs associated with the provision of informal care are usually estimated based on the reduced potential of the caregiver to partake in paid work (both in terms of whether they are able to undertake paid work, and if so the hours of work undertaken). In addition to the hours of informal care provided, these opportunity costs are also likely determined by the necessity to perform particular informal care tasks at specific moments of the day. The literature, to date, has largely overlooked this dimension of informal care.

Thu, 07/20/2017 - 15:12

Ethnicity and family support

'They look after their own' is a phrase with which we are all familiar but to what extent do ethnic and minority groups care for and support for their family members? Given the current focus on carers, Rosalind Willis in this article presents the findings of a preliminary study into ethnicity and family support, and highlights that what is generally defined as 'support' may perhaps be interpreted differently within and because of different cultures. 

Thu, 07/20/2017 - 15:12

'Normal disruption': South Asian and African/Caribbean relatives caring for an older family member in the UK

Little has been written on informal care of an older relative among minority ethnic groups in the UK. This paper examines the meanings of being an informal carer of an older family member for South Asian and African/Caribbean carers. The analysis presented here is based on qualitative interviews with 21 African/Caribbean and 15 South Asian carers. Drawing primarily on the notions of biographical continuity, biographical reinforcement and biographical disruption, the meanings of caring are examined.

Thu, 07/20/2017 - 15:12

The legitimacy of rest: conditions for the relief of burden in advanced dementia care-giving

This paper is a report of a study conducted to identify the conditions that favour the relief of the burden of female caregivers of relatives with advanced dementia. Respite services are a response to caregivers' needs for rest. Although they are wanted and needed services, caregivers do not always have access to or use them. The need for a caregiver-centred approach to relieving the burden of care is a conclusion which respite researchers are increasingly reaching. The method was, grounded theory was chosen as the research strategy.

Thu, 07/20/2017 - 15:12

It could be you: a report on the chances of becoming a carer

Carers look after family, friends or partners in help because they are ill, frail or have a disability. The care they provide is unpaid. In any year 301,000 adults in the UK become carers. Three out of five carers have had to give up work to care. Almost all of us have been or will be a carer during our lifetime.

Thu, 07/20/2017 - 15:12

Trajectories of quality of life in early-stage dementia: individual variations and predictors of change

Background: Little evidence is available about how quality of life (QoL) changes as dementia progresses.

Objectives: We explored QoL trajectories over a 20-month period and examined what predicted change in QoL.

Thu, 07/20/2017 - 15:12