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Development of a conceptual framework of positive aspects of caregiving in dementia

Research on family caregivers usually focuses more on stress and burden, especially in the context of looking after a person with dementia. This leads to fewer considerations of positive aspects of care giving. Thus enhancing these positive aspects represents an innovative approach to caregivers' support. Furthermore, these aspects need more conceptualisation to underpin the development of such an approach. This article proposes a conceptual framework of the positive aspects of care giving based on an integrative literature review.

Thu, 07/20/2017 - 15:12

Caring for a relative with dementia: family caregiver burden

This paper is a report of part of a study to investigate the burden experienced by families giving care to a relative with dementia, the consequences of care for the mental health of the primary caregiver and the strategies families use to cope with the care giving stressors. The cost of caring for people with dementia is enormous, both monetary and psychological. Partners, relatives and friends who take care of patients experience emotional, physical and financial stress, and care giving demands are central to decisions on patient institutionalisation.

Thu, 07/20/2017 - 15:12

Citizenship, migration and the value of care in the European Union

This paper examines the relationship between care and mobility. It does so within the specific context of intra‐EU migration and the development of European citizenship. Citizenship of the Union bestows valuable social rights on mobile community nationals. Entitlement under the provisions is not, however, universal but conditional and privileges those in paid work.

Thu, 07/20/2017 - 15:12

Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta- analysis

In the present meta-analysis, we integrated findings from 228 studies on the association of six caregiving-related stressors and caregiving uplifts with burden and depressed mood. Care recipients' behavior problems showed stronger associations with caregiver outcomes than other stressors did. The size of the relationships varied by sample characteristics: Amount of care provided and care receivers' physical impairments were less strongly related to burden and depression for dementia caregivers than for caregivers of nondemented older adults.

Thu, 07/20/2017 - 15:12

A land not fit for heroes

The government once called carers unsung heroes and promised to legislate to improve their lives. Reports on how many of the measures it has taken have been welcomed but extra cash to ease the acute financial difficulties many endure is still in short supply.

Thu, 07/20/2017 - 15:12

Rescue me

People caring for someone with a mental illness finally have a right both to an assessment and to have their assessed needs met. The author explains how much difference this will make to carers and their loved ones.

Thu, 07/20/2017 - 15:12

Care and technology in the 21st century

In the first of our Future Care series, Care and technology in the 21st centuryexplores the current landscape on care and technology and calls for a technological transformation in the way we support families caring for ill, frail and disabled loved ones.

The report argues that the way families already use technology to work, plan their lives, shop and socialize should also be reflected in how we care and calls on the Government to set up a new independent, expert taskforce to drive innovation and partnership on care technology.

Thu, 07/20/2017 - 15:12

Listening to children: Meeting the needs of young carers

This chapter examines the impact of caring on the lives of young people (i.e. those under 18). The authors point to the difficulties in enumerating such carers. They estimate numbers in excess of 50,000. Although the issue of young caring is not new, research into the phenomenon is. The authors refer to the initial studies of the late 1980s and early 1990s. They focus on the work of the Young Carers Research Group (YCRG), established in 1992. The Group has an on-going work programme which aims to give young carers a voice, raise awareness and influence policy.

Thu, 07/20/2017 - 15:12

Strain and its correlates among carers of people with dementia in low-income and middle-income countries; a 10/66 Dementia Research Group population-based survey

Objectives: In a multi-site population-based study in several middle-income countries, we aimed to investigate relative contributions of care arrangements and characteristics of carers and care recipients to strain among carers of people with dementia. Based on previous research, hypotheses focused on carer sex, care inputs, behavioural and psychological symptoms (BPSD) and socioeconomic status, together with potential buffering effects of informal support and employing paid carers.

Thu, 07/20/2017 - 15:12

Safeguarding in a personalised era

Personalisation is about letting older and disabled people take risks others take for granted. But this means councils must find new ways of keeping them safe. [Introduction]

Thu, 07/20/2017 - 15:12