carers

Autism is a neurodevelopmental disorder that affects at least 1% of the population. There is an urgent need to improve healthcare of people with autism. Research shows that autistic people die on average 16 years earlier than the general population and this increases if they also have learning disabilities. This Autism Toolkit aims to be a 'one stop shop', a user-friendly guide to autism for primary care professionals, people affected by autism, clinical commissioning groups, as well as interested members of the general public.

Ensuring the development and delivery of person-centred care in services providing respite care and short breaks for people with dementia and their carers has a number of challenges for health and social service providers. This article explores the role of organisational culture in barriers and facilitators to person-centred dementia care.

A caregiver is an unpaid person, typically a family member or friend, who helps an ill person with the physical care and management of a disease. The task of care-giving results in additional responsibilities on the caregiver's daily life, and occupies the caregiver's time, energy, and attention, which is demanding and complex. The burden from care-giving, when prolonged, might affect the physical health of caregivers, causing symptoms, such as anxiety and depression, leading to a negative impact on their capacity for social engagement.

Chronic Illness represents a growing concern in the western world and individuals living with chronic illness are primarily managed at home by family caregivers. A scoping review of the home-care literature (2004-2009; updated with review articles from 2010 to January 2013) on the topic of the caregiver revealed that this group experiences the following safety-related concerns: caregivers are conscripted to the role, experience economic hardship, risk being abused as well as abusing, and may well become patients themselves.

Mark Ivory investigates current thinking among policy makers on the economics of providing more support to long-term carers.

Looks at a government backed private member's bill which is seeking to extend the rights of carers.

We conducted a mixed-methods case study to explore the perceptions of family caregivers and palliative cancer patients of home telehealth, and their experience with it. The intervention in the randomized controlled trial from which study participants were selected consisted of specialist nurses available 24 hours per day who communicated with patients and families using videophones, with optional remote monitoring. Qualitative data were collected from interviews with five patient/caregiver dyads and seven bereaved family caregivers, direct observation and nursing documentation.

Background: This paper explores carers' views of dying, death and bereavement for family members who had recently died with heart failure adding to a growing literature on end of life experiences for people with conditions other than cancer.

Methods: Twenty interviews were conducted with bereaved carers of older people with heart failure (HF) who had been participating in a longitudinal study. Carers were approached in writing 3 months after the death. Interviews were transcribed verbatim and analysed thematically with the assistance of NUD*IST.

Social and political constructions of carers have been criticized for undervaluing the complexities of the experiences of carers. However, relatively little research has attempted to generate more meaningful constructions of carers by drawing these considerations together. The purpose of this article is to begin addressing this need. To accomplish this, the article is presented in two sections. First, an overview is provided on the current constructions of carers and suggested considerations for research.