CAREN logo

You are here

  1. Home
  2. carers

carers

A forgotten aspect of the NICE reference case : an observational study of the health related quality of life impact on caregivers of people with multiple sclerosis

BACKGROUND: There are few published health technology assessments that have included the impact of a disease or treatment on caregivers' health related quality of life (HRQL). The objectives of this study were to explore the overall HRQL of caregivers of people with multiple sclerosis compared to matched controls, and more specifically explore the impact of different levels of functioning in people with MS on caregivers' HRQL scores. METHODS: A cross sectional observational study conducted as an online survey was undertaken in the UK.

Thu, 07/20/2017 - 15:11

Evaluating carer information groups

The author describes carer information groups developed and run by Stockport Dementia Care Training, and the research undertaken to evaluate their effects.

Thu, 07/20/2017 - 15:11

Social work and elder abuse: a Foucauldian analysis

The thesis pursued in this article is that an accelerating interest in elder abuse is central to understanding modern care policy as a social phenomenon. It will be argued that the 'discovery' of elder abuse legitimates practice in which the state monitors and co-ordinates but does not intervene. This has led to a social situation that has radically transformed social welfare of its traditional rationale as 'caregiver'. Simultaneously, informal care has become the centrepiece of social policy following the adoption of market forces to community care policies in the UK and elsewhere.

Thu, 07/20/2017 - 15:11

What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden

Objective: Prevailing measures of subjective caregiver burden either have no overall summary score or do not consider the relative importance caregivers attach to different dimensions of burden. Our aim was to assess which dimensions informal caregivers perceive as being important to their overall burden from care giving.

Design: Cross-sectional.

Thu, 07/20/2017 - 15:11

A study of the carers strategy (2000): supporting carers in Wales

The Carers Strategies in England and Wales herald opportunities to develop new ways to support carers. This paper reports findings from a five-year study looking at the Carers Strategy in Wales. It presents interview data arising from fieldwork with carers and statutory and voluntary sector staff. Our findings highlight a gap between the positive perceptions of staff concerning improvements in the availability and types of support to carers and carers' everyday experiences.

Thu, 07/20/2017 - 15:11

Suppporting family caregivers: The hospital nurse's assessment of family caregiver needs: a smooth transition for the patient is the ultimate goal

This article is part one of a three-part series designed to help nurses help caregivers.

Thu, 07/20/2017 - 15:11

Carers of older adults' satisfaction with public mental health service clinicians: a qualitative study

Aims and objectives: The purpose of our paper was to explore primary caregivers' experience of the way public mental health nurses and other mental health clinicians responded to them as primary carers of older adults with mental illness.

Background: As populations age, the prevalence of mental illness in older adults will increase and the burden of care placed on family carers will intensify. While family carers are essential to the well-being and quality of life of older adults with mental illness, they frequently experience marginalisation from clinicians.

Thu, 07/20/2017 - 15:11

Working with carers: guidelines for good practice

There are at least six million unpaid carers in Great Britain and Northern Ireland, and 1.25 million provide at least 50 hours of care a week.1 One in five households contains a carer.2 Sixteen per cent of carers are over 65, and half of those being cared for are 75 or older.3 Many are ‘round the clock’ carers. Carers are the bedrock of the care and support system; the vast majority of care needs are provided by unpaid carers at home.

Thu, 07/20/2017 - 15:11

Living with moderate or severe traumatic brain injury: the meaning of family members' experiences

Traumatic brain injury (TBI) has long-lasting consequences not only for the individual with the injury but also for family members. The aim of this study is to elucidate the meaning of family members' experiences of living with an individual with moderate or severe TBI. The data have been collected by means of qualitative research interviews with eight family member participants. A phenomenological hermeneutic interpretation (Ricouer, 1976) of the data reveal that family members struggle with their own suffering while showing compassion for the injured person.

Thu, 07/20/2017 - 15:11