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Services for people with dementia are not meeting families' expectations

Hot Topic series. Comments on the incidence and impact of Alzheimer Disease, focusing on the effect on informal carers and the need for services to be provided to support them and allow patients to lead independent lives. [(BNI unique abstract)] 0 references

Thu, 07/20/2017 - 15:10

Experiences of 'care' in mental health

The concept of care has attracted considerable interest and there has been growing attention both to the needs of carers and how they may sometimes conflict with those of service users. Draws on initial research findings to examine experiences of care in mental health for men and women and for carers and users.

Thu, 07/20/2017 - 15:10

Influence of carer expressed emotion and affect on relapse in non-affective psychosis

This study aimed to investigate the relationships between carer expressed emotion, patients’ symptoms and carer characteristics during a recent relapse of psychosis. A total of 86 patients and carers were investigated in a cross-sectional design. Patients whose carers showed high expressed emotion had significantly higher levels of anxiety and depression, but not more psychotic symptoms or lower self-esteem. Linear regression showed that carers’ critical comments predicted anxiety in patients. Critical comments were related to low carer self-esteem and avoidant coping strategies.

Thu, 07/20/2017 - 15:10

Religiosity as a mediator of caregiver well-being: does ethnicity make a difference?

This study used an adaptation of the stress and appraisal model to examine the mediating effects of religiosity on caregiving strain and gain with an ethnically diverse sample of 384 Alzheimer's disease caregivers in the United States.

Thu, 07/20/2017 - 15:10

Is NHS Direct meeting the needs of mental health callers?

Background: NHS Direct is a new service that offers 24-hour advice from trained nurses. The National Service Framework for Mental Health and the National Strategy for Carers both mention NHS Direct as an important source of support for people with mental health problems. Aims: This paper reports findings from an evaluation of the Department of Health's NHS Direct mental health initiative.

Thu, 07/20/2017 - 15:10

Understanding the needs of the family carers of people with dementia

As more people are living longer this growing number of older people means an increase in mental health problems. Twenty-five per cent of people over 85 develop dementia and between ten and sixteen per cent of those over 65 develop clinical depression. In addition, people who developed severe and enduring mental health problems such as schizophrenia when young are now growing older (Audit Commission, 2000). Most people with dementia live in the community. About half are cared for at home by a family carer, usually a spouse or adult child (Keady & Nolan, 1995).

Thu, 07/20/2017 - 15:10

End of life treatment decisions in people with dementia: carers' views and the factors which influence them

Objective. Treatment decisions in life threatening situations (TD) are poorly studied in people with dementia.

Method. The carers of people with dementia were asked four TD questions, pertaining to cardiac resuscitation, intravenous fluids, oral antibiotics and intravenous antibiotics. The impact of key variables (age, dementia severity, psychiatric co-morbidity, physical illness, family relationship of carer) on TD were evaluated.

Thu, 07/20/2017 - 15:10

Psychological distress and subjective burden of caregivers of people with mental illness: the role of affiliate stigma and face concern

This study examined the internalization of stigma among carers of people with severe mental health problems experiencing stigma. One hundred and eight Chinese caregivers in Hong Kong were surveyed. Affiliate stigma was found to serve as a partial mediator between face concern and caregiver distress and a full mediator between face concern and subjective burden. Cultural linkage of stigma and caregiver outcomes was identified, suggesting that researchers and practitioners should use a culturally sensitive approach to understand caregivers’ experience and alleviate their stigma.

Thu, 07/20/2017 - 15:10