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Partners in care: who cares for the carers?

Little time may be taken to listen to what carers have to say or explain clinical and service policies. The odd 5 minutes at the end of a busy clinic is not enough; being paraded in front of the ward round is simply unacceptable, but it still happens. A 20-mile trip for family carers just as imprisoned by the patient’s mental illness, geographically and financially, may be impossible.

Thu, 07/20/2017 - 15:10

Recent research on physical aggression in persons with intellectual disability: an overview

Physically aggressive behaviours pose major problems to carers supporting people with intellectual disability. This review considers the prevalence and nature of this form of challenging behaviour within this population and describes possible causal factors. Discusses the present status of both behavioural and pharmacological interventions for aggression and outlines the importance of devising reactive management plans for aggressive behaviours.

Thu, 07/20/2017 - 15:10

How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers

Background. In most economically developed countries, patients, their informal and professional carers and policy makers are calling for more care in the community.

Objectives. To involve patients with cancer, and their carers, in designing a framework for providing effective cancer care in primary care.

Methods. Two discussion groups comprising 18 people with current cancer and carers met monthly over a year in the south of Scotland.

Thu, 07/20/2017 - 15:10

Becoming a caregiver: New family carers' experience during the transition from hospital to home

AIMS AND OBJECTIVES: To explore and understand the experience of new informal caregivers in Italy during the transition from hospital to home.

BACKGROUND: Frequent patient discharge into the home environment has lead to a significant increase in postdischarge care being provided by family caregivers. The transition period in particular is seen as a period of great significance, as caregivers may be unprepared and concerned as to the amount of care required by the recipient.

Thu, 07/20/2017 - 15:10

A synthesis of knowledge about caregiver decision making finds gaps in support for those who care for aging loved ones

We conducted a mixed-methods knowledge synthesis to assess the effectiveness of interventions to improve caregivers' involvement in decision making with seniors, and to describe caregivers' experiences of decision making in the absence of interventions. We analyzed forty-nine qualitative, fourteen quantitative, and three mixed-methods studies. The qualitative studies indicated that caregivers had unmet needs for information, discussions of values and needs, and decision support, which led to negative sentiments after decision making.

Thu, 07/20/2017 - 15:10

Access all areas

The Access Initiative is run by the Minority Ethnic Carers of Older People Project in partnership with Edinburgh Council, West Lothian Council, minority ethnic carers, and older people. Its twin aims are to give carers from Edinburgh's south Asian and Chinese communities a break from caring and to provide culturally competent services for older members of the family who need care. [Introduction]

Thu, 07/20/2017 - 15:10

Examining the trajectories of children providing care for adults in rural Kenya: Implications for service delivery

Research on caregiving children tends to be limited to children's caregiving experiences of parents with a specific disease or disability. This has led to a common perception that children's caregiving is a single, uniform and often long-term experience. Whilst this is most certainly the case for many children in economically more advanced countries, this may not hold true in rural Africa, where poverty and AIDS can have significant knock-on effects on entire families and communities.

Thu, 07/20/2017 - 15:10

What about the carers? Exploring the experience of caregivers in a chemotherapy day hospital setting

Interest in the concerns of cancer patients’ carers has been growing steadily over the last decade reflected in key cancer service policy documents [DOH, 1995. A Policy Framework for Commissioning Cancer Services (Calman-Hine Report). London, HMSO; DOH, 2002. The NHS Cancer Plan]. Despite this acknowledgement, it can be argued that less is known about carers’ experience in the cancer treatment context. Carers can be defined as someone who shares the experience of cancer with the patient.

Thu, 07/20/2017 - 15:10

Community-based primary health care for older adults: A qualitative study of the perceptions of clients, caregivers and health care providers

Background: Older persons are often poorly served by existing models of community-based primary health care (CBPHC). We sought input from clients, informal caregivers, and health care providers on recommendations for system improvements.

Methods: Focus group interviews were held with clients, informal caregivers, and health care providers in mid-sized urban and rural communities in Ontario. Data were analyzed using a combination of directed and emergent coding. Results were shared with participants during a series of feedback sessions.

Thu, 07/20/2017 - 15:10