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Interactive health communication applications for chronic disease: patient and carer perspectives

BACKGROUND: Interactive Health Communication Applications (IHCAs) are computer-based, usually web-based, information packages for patients that combine health information with at least one of social support, decision support, or behaviour change support. These are innovations in health care and their effects on health are uncertain.

OBJECTIVES: To assess the effects of IHCAs for people with chronic disease.

Thu, 07/20/2017 - 15:10

Induction award: supporting people who have a learning disability: trainer pack with CD-ROM

The pack includes: introduction with information on: learning disability qualifications and standards; supporting assessment; involving people with learning disabilities and family carers in training; session plans; CD-ROM containing: activity sheets PowerPoint presentations video clips, and pdfs of all four study books with guidance on how to link learning to the relevant NVQ/SVQ.

Thu, 07/20/2017 - 15:10

Self-management by family caregivers to manage changes in the behavior and mood of their relative with dementia : an online focus group study

Background: Self-management is important for family caregivers of people with dementia, especially when they face changes in their relative’s behavior and mood, such as depression, apathy, anxiety, agitation and aggression. The aim of this study is to give insight into why these changes in behavior and mood are stressful for family caregivers, what self-management strategies family caregivers use when managing these changes and the stress they experience.

Thu, 07/20/2017 - 15:10

Nearest and dearest? The neglect of lesbians in caring relationships

The article argues that caring within lesbian relationships has been ignored in social and health care studies and practice. It critiques the dominance of caring debates by relationships between parents and children and partnerships, but with the unspoken presumption that those involved are heterosexual. The paper concludes that social workers should engage with lesbian carers in supporting individuals and networks. It draws out a range of implications for policy, practice and research agendas.

Thu, 07/20/2017 - 15:10

Family care for immigrants with dementia: the perspectives of female family carers living in the Netherlands

BACKGROUND: The prevalence of dementia is increasing among non-western immigrants. It is known that family care is provided relatively often among immigrant groups. Until now, however, relatively little was known about how relatives of people with dementia in the immigrant communities perceive family care. This study therefore focuses on describing the perspectives of female Turkish, Moroccan and Surinamese Creole family carers in the Netherlands about providing family care to a close relative with dementia.

Thu, 07/20/2017 - 15:10

Choice or chore? Carers' experiences of direct payments

Report using carers' experiences to assess the effectiveness and value of the direct payments system and make recommendations for improvements.

Thu, 07/20/2017 - 15:10

Preferences for place of care and place of death among informal caregivers of the terminally ill

Objectives: (1) To determine informal caregivers perceptions about place of care and place of death; and (2) to identify variables associated with a home death among terminally ill individuals who received in–home support services in a publicly funded home care system.

Thu, 07/20/2017 - 15:10

Needs of the service user

This title looks at the needs of the service user in a care environment and the care which needs to be provided by an establishment and its staff. A better understanding of the needs of service users will improve the care skills of carers as well as satisfaction in their own work.

Thu, 07/20/2017 - 15:10

Older people - recipients but also providers of informal care: an analysis among community samples in the Republic of Ireland and Northern Ireland

Data on both the provision and receipt of informal care among populations of older adults are limited. Patterns of both informal care provided and received by older adults in the Republic of Ireland (RoI) and Northern Ireland (NI) were evaluated. A cross-sectional community-based population survey was conducted. Randomly selected older people (aged 65+, n = 2033, mean age (standard deviation): 74.1 years (6.8), 43% men, 68% response rate) provided information on the provision and receipt of care, its location, and the person(s) who provided the care.

Thu, 07/20/2017 - 15:10

Caregiving in the Pacific Rim: a comparison of Asian and non-Asian caregiving experiences

This study compares the results of two surveys of informal caregivers conducted in California and Hawaii (N = 1677) to determine if there is a uniquely Asian model of caregiving. Differences between Asian and non-Asian caregivers were found in the percentage of male caregivers, the impact of caregiving personally and on the family, and on employment. Furthermore, in multivariate analysis, being of Asian origin retained significance in predicting both positive and negative caregiver outcomes.

Thu, 07/20/2017 - 15:10