carers

This article describes a caregiver education program that includes both family and professional caregiver issues developed by the Rosalynn Carter Institute for Human Development in the United States. In the program there are modules designed too bring professional and family caregivers together for a better appreciation of collaboration and teamwork; discussions of the meaning of caregiving; a module looking at how well carers are looking after themselves; modules focusing on building collaborative relationships with other caregivers; problem solving; and accessing resources.

This article draws on findings from a three-year project to develop and deliver culturally appropriate support group materials for South Asian and Eastern European family carers of relatives with dementia living in the UK. Analysis of interview and field note data revealed insights into how understandings of dementia in different cultural contexts can become operationalised through stigma processes and in turn influence the ways in which people with dementia and their family carers engage with formal and informal support. 

Carers can be defined as someone who ‘spends a significant proportion of their life providing unpaid support to family or potentially friends. This could be caring for a relative, partner or friend who is ill , frail , disabled or has mental health or substance misuse problems.1 Such carers are not to be confused with paid carers (often described as Care workers, Senior care workers, community support, outreach workers and personal assistants). However, those employed in such roles may also be carers in their own time for friends or family.

Swaleh Toofany examines the evolution and possible future options for hospital at home schemes

Healthcare providers are under pressure to deliver cost-effective care to a population that is ageing. Increased longevity means the number of patients with long-term conditions and chronic illness is growing. Expanding the range of services delivered to patients in their homes may provide a solution by keeping patients out of hospital.

There has been much debate about the most appropriate site for in‐patient psychiatric care for people with learning disabilities. The evidence base for service delivery for this group is very scant. Even less is known about the experiences of service users and their carers, as their voices have been largely absent from this debate among service providers and policy makers. This article summarises results from a study into the experiences of adults with learning disabilities who were admitted for in‐patient psychiatric care. Their carers' views were also investigated.

Issues related to paid work and care are of global importance, reflecting the twin pressures of population ageing and efforts to increase labour market participation. Informal carers of sick, disabled or older people can experience tensions between policies aimed at support for care and support for employment. This article discusses a study of carers’ decision-making around work and care, drawing on evidence from interviews with 80 working-age carers in England.

It is frequently asserted that the views of patients or service users should inform the structure and delivery of health and social care services. In the UK, patient participation, the expertise of service users and user involvement in the design and outcomes of research have been repeatedly emphasized as producing services which are more responsive, better coordinated and less stigmatizing. The NHS has highlighted the importance of involving service users in education and training. This article reports on user and carer views about learning disability nursing.

The views of people with experiences of using services and the views of their carers about the 2005 Mental Capacity Act (England and Wales) are reported in this article. Interviews with ten people about the detail of the Act prior to its implementation revealed that they welcomed the principles of the Act, and were able to relate these to aspects of their experiences. The Act's framework for planning around care and treatment and for making advance decisions was seen as offering greater choice and empowerment.

The Blake Marsh lecture, an annual lecture on learning disability, was endowed in 1963 in memory of Dr Blake Marsh, the former medical superintendent of Bromham House Colony in Bedford.